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You can find an English version of the newsletter online. If it is not automatically translated you can change the language at the very end of it.
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Hoffnungsbaum-Newsletter
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Association for the promotion of research and treatment of NBIA diseases
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There is news about NBIA!
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You can access all contributions at any time at News on our website.
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We have once again put together a newsletter for you this year. It contains information about the association's activities in 2020 and an outlook for next year. If you would like to be kept up to date, please subscribe to our online newsletter.
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As at the beginning of the year, the Bianchi family is once again actively collecting donations for PKAN research during Advent, as their 3-year-old son Giulio suffers from this form of NBIA. In their home town of Kronau, parents Melanie and Tony have set up a stand with information material and Christmas cards from Hoffnungsbaum e.V.our banner and a donation box. This campaign alone has already raised ...
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The association office will be closed from December 18 to January 10. We wish everyone happy holidays and a good start to the new year!
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Association for the promotion of research and treatment of NBIA diseases
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