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Hoffnungsbaum-Newsletter

Association for the promotion of research and treatment of NBIA diseases
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There is news about NBIA!

You can access all contributions at any time at News on our website.

Cycling for BPAN - Million Dollar Bike Ride 2021

Cycling for BPAN - Million Dollar Bike Ride 2021
It's that time again: The Million Dollar Bike Ride (MDBR) of the University of Pennsylvania in Philadelphia will take place for the 8th time until June 12, 2021. Due to the pandemic, this charity bike race will once again not only take place in the USA, but virtually all over the world! This gives us in Germany the chance to be part of it again. Be it only by collecting ...

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PKAN family launches fundraising campaign - Newspapers report

PKAN family launches fundraising campaign - Newspapers report
Shortly after their 11-year-old daughter Vivienne was diagnosed with PKAN last year, the Helmold family set out to collect donations for the PKAN Fund at Hoffnungsbaum for research into one of the most common forms of NBIA, because the children, adolescents and mostly young adults struggling with PKAN need nothing more than effective therapies. Vivienne with her parents,Photo: Helmold family Multiple ...

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Hoffnungsbaum e.V.
Association for the promotion of research and treatment of NBIA diseases
newsletter@hoffnungsbaum.de
www.hoffnungsbaum.de
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