Radfahren für BPAN-Forschung – Million Dollar Bike Ride 2023

Auch in diesem Jahr sammelt der Million Dollar Bike Ride (MDBR) der University of Pennsylvania in...

International NBIA Symposium held in Switzerland in October 2022

2020 fand das letzte NBIA-Wissenschaftlertreffen pandemiebedingt nur online statt. Im Oktober 2022...

Two MPAN project grants totaling $140,000 awarded.

Hoffnungsbaum e.V. has, in conjunction with three sister organizations in Europe and the USA, developed two...

Mulled wine stand in aid of Hoffnungsbaum and Team Bananenflanke

The Sandbox Friends, Melanie Schratzenstaller, Michael Bogner, Stephan Thalhammer, Stefan Huber,...

8th International Symposium on NBIA in Switzerland

NBIA scientists will meet to share their research Oct. 13-15 in...

Research project leads to a stem cell model of FAHN

A team of German scientists who received a 2020 grant from the NBIA Disorders Association...

Pilot Grant of $69,775 announced for BPAN research.

The Million Dollar Bike Ride 2022 (Learn more about this fundraiser) raised $69,775 in...

NBIA Family Conference 2022 postponed!

Hoffnungsbaum e.V. wanted in September 2022 in the youth hostel of Heilbronn the 9....

July 6, 2022, Online Lecture: Myofasciotomy - a minimally invasive treatment for shortened muscles.

NBIA disorders are often associated with limited range of motion, changing muscle tension and...

Fundraising

Here you can find donation appeals supported by Hoffnungsbaum .

German-British family takes up the fight with BPAN

German-British family takes up the fight with BPAN

Kelly Sayers and Oliver Feiler are parents of two children: Max (8 years old) and Emily (5 years old). The family lives near London, England. 1 ½ years ago, they received the devastating news that Emily had BPAN. BPAN...

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Cycling for Laurin as part of the Million Dollar Bike Ride

Cycling for Laurin as part of the Million Dollar Bike Ride

As part of the Million Dollar Bike Ride (MDBR), we started a fundraiser in our backyard at home in support of BPAN. Friends, relatives and acquaintances were invited to come by our house on their bikes and bring a donation. In return, there were fresh...

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Cycling for BPAN - Million Dollar Bike Ride 2021

Cycling for BPAN - Million Dollar Bike Ride 2021

It's that time again: The Million Dollar Bike Ride (MDBR) of the University of Pennsylvania in Philadelphia will take place for the 8th time until June 12, 2021. Due to the pandemic, this charity bike race will once again take place not only in the USA, but virtually all over the...

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PKAN family launches another fundraising campaign

PKAN family launches another fundraising campaign

As at the beginning of the year, the Bianchi family is now once again actively collecting donations during Advent for the benefit of PKAN research, as their 3-year-old son Giulio suffers from this form of NBIA. In their hometown Kronau, parents Melanie and Tony have set up a booth with...

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