|
You can find an English version of the newsletter online. If it is not automatically translated you can change the language at the very end of it.
|
|
|
|
|
|
Hoffnungsbaum-Newsletter
|
Association for the promotion of research and treatment of NBIA diseases.
|
|
|
|
|
|
|
There is news about NBIA!
|
All contributions can be viewed at any time at News read on our website.
|
|
|
|
|
|
|
|
|
This year we have again compiled an information letter for you. It contains information on the association's activities in 2020 and an outlook for next year. If you always want to be kept up to date, then subscribe to our online newsletter.
|
|
|
|
|
|
|
|
|
As at the beginning of the year, the Bianchi family is now once again actively collecting donations during Advent for the benefit of PKAN research, as their 3-year-old son Giulio suffers from this form of NBIA. In their hometown Kronau, the parents Melanie and Tony have set up a booth with information material and Christmas cards from Hoffnungsbaum e.V., our banner and a donation box. Due to this action alone, already ...
|
|
|
|
|
|
|
|
From December 18 to January 10, the association office will not be staffed. We wish you all a happy holiday and a good start into the new year!
|
|
|
|
|
|
|
Association for the promotion of research and treatment of NBIA diseases.
|
|
|
|
|
|