Hoffnungsbaum e.V.

Association for the promotion of research and treatment of NBIA diseases

We want to make NBIA diseases curable.

NBIA diseases are like Parkinson's and dementia in childhood.

Giving hope - promoting research!

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Hope - Help - Healing...

We support those affected and their families.

Hoffnungsbaum e.V. - We want to make NBIA diseases curable.

In simple terms, NBIA diseases can be thought of as a mixture of Parkinson's disease and childhood dementia. In affected children, this manifests itself in progressive movement and developmental disorders. They gradually lose their motor skills and suffer severe, painful muscle spasms (dystonia). Depending on the NBIA disease, dementia, severe epilepsy and various other symptoms may also occur. More info

NBIA diseases usually begin in childhood and adolescence, have hardly been researched and are still incurable. Those affected often die young. Hoffnungsbaum e. V. is committed to international research funding in order to give NBIA sufferers and their families hope for better treatment and a cure that has not yet been found. We need your support - donate now!

The association Hoffnungsbaum e.V.

Here you will find all the important information about the association and membership.

What is NBIA?

Here you will find information on the individual NBIA diseases.

Help for affected

Here, those affected or their relatives will find important information and assistance.

CoA Therapeutics bricht Klinische Studie für PKAN ab

Übersetzung eines englischen Artikels von Amber Denton, Präsidentin der NBIA Disorders...

Update on the CoA-Z clinical trial

Over the past few months, the OHSU CoA-Z study team has shared the initial study results with all...

NBIA International Scientific Conference in Poland

On October 19 and 20, 2023, a BPAN workshop, an NBIA Alliance meeting, was held in Warsaw, Poland....

Videos of the NBIA Family Conference 2023 in the USA online

For the first time since the pandemic, the NBIA Disorders Association held the 12th International...

Insights into BPAN research at the family conference in the USA

BPAN families attending the NBIA Disorders Association (NBIADA) Family Conference in May in...

MDBR sets donation record and makes 2 scholarships possible

This year, the "NBIA Disorders" team and NBIA families have been involved in the Million Dollar Bike...

BPAN researcher develops stem cell model and awaits funding for planned drug screening

Dr. Paul Lockhart of the Murdoch Children's Research Institute in Melbourne, Australia, says that...


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