As at the beginning of the year, the Bianchi family is once again actively collecting donations for PKAN research during Advent, as their 3-year-old son Giulio suffers from this form of NBIA. In their home town of Kronau, parents Melanie and Tony have set up a stand with information material and Christmas cards from Hoffnungsbaum e.V.our banner and a donation box. This campaign alone has already raised more than 2,300 euros in Hoffnungsbaum e.V. for our PKAN research fund.
The family also collects information about their Instagram account for research. In just a few days, more than €4,600 was raised through online donations. The final amount will then flow into our PKAN research fund.
Individual donations will also be made directly to our donation account as part of this campaign. We will report on the final result of this pre-Christmas fundraising campaign and thank the Bianchi family for supporting our research funding.
We hope that we will be able to support another PKAN project next year together with partner organizations from the NBIA patient movement - also thanks to the tireless efforts of the Bianchi family. We will report on this. Get an overview of our previous projects NBIA project funding.
Anyone wishing to donate specifically to PKAN research is asked to state "PKAN" as the intended purpose when making the transfer.
Other NBIA variants such as MPAN, BPAN or others can also be specified as intended uses. The funds then flow into quality-tested scientific projects dedicated to these NBIA forms.
Please note: We can only issue donation receipts for direct donations by bank transfer to Hoffnungsbaum e.V. we can issue donation receipts. You will find the account information at the bottom of the page.
Melanie and Tony Bianchi at their information stand