NBIA scientists will meet to share their research from October 13-15 in Lausanne, Switzerland, as part of the 8th International NBIA Symposium. More than 20 scientists and physicians from all over the world will present the results of their NBIA projects and learn about the latest developments in current NBIA research. The high-calibre programme includes presentations in particular on the most common NBIA variants PKAN, BPAN, MPAN, PLAN and FAHN and beyond, as well as subsequent discussions on the necessary next steps in the various NBIA research branches.
In a confidential atmosphere, the symposium also offers the opportunity to get to know the researchers personally and to network, also with regard to future cooperation in research projects. Clinically active physicians, most of whom also have research experience in NBIA, can also exchange their experiences with treatment options for NBIA patients and thus take new insights into their everyday clinical practice.
Hoffnungsbaum e.V. is one of the sponsors of this important NBIA event with €5,000, the first face-to-face meeting of NBIA researchers since 2017. In 2020, the symposium was only held online due to the pandemic. Our U.S. partner organization, the NBIA Disorders Accociation, is contributing $5,000 in the form of travel grants for early career scientists.
The symposium is organized by the Swiss NBIA patient organization NBIA Suisse under the leadership of its chairwoman Fatemeh Mollet. Under the chairmanship of Prof. Dr. Thomas Klopstock, head of the NBIA Center at the Friedrich Baur Institute in Munich, a 5-member scientific committee has taken over the program. For Hoffnungsbaum e.V. our chairman Markus Nielbock worked there as a patient representative.
Website of the symposium: https://nbiasuisse.org/8th-international-symposium-on-nbia/