Latest posts
The latest posts from all categories are displayed here.
PKAN Online-Treffen am 25.09.2024 – jetzt anmelden!
Liebe Familien, der Austausch unter Betroffenen bzw. deren Familien kann unglaublich wertvoll sein. Mit der Zeit sammeln Betroffene ein enormes Wissen an, von dem auch andere profitieren könnten. Daher hat Hoffnungsbaum ein neues Format ins Leben gerufen, das...
Rücktrittsforderungen zeigen Wirkung – KV-Chef Heckemann wird abgesetzt
In einem offenen Brief hatte unser Dachverband, die Allianz Chronischer Seltener Erkrankungen (ACHSE) e.V., die Absetzung von Klaus Heckemann, dem bis dahin Vorstandsvorsitzenden der Kassenärztlichen Vereinigung in Sachsen nach dessen umstrittenen Äußerungen zu einer...
Aus einer Geschenkspende werden zwei
Seit einiger Zeit gibt es auf unserer Website die Möglichkeit, mit dem Spendenformular eine Geschenkspende zu generieren. Man spendet ganz normal, kann aber zusätzlich eine Urkunde mit verschiedenen Motiven generieren und einen Absender und Empfänger der Spende...
NBIA-Gentherapie Updates
Historische Spende von 1,2 Millionen Dollar gibt Treibstoff für PKAN-Gentherapie Eine beeindruckende Spende in Höhe von 1,2 Millionen Dollar hat es der PKAN-Gentherapie (Pantothenat-Kinase-assoziierten Neurodegeneration) ermöglicht, einen großen Schritt nach vorn zu...
Dr. Ivano Di Meo erhält $100.000 Förderung für die INAD-Forschung
Die NBIA Disorders Association freut sich, die Ergebnisse der Ausschreibung für ein Stipendium in Höhe von 100.000 Dollar bekannt zu geben, mit dem die Erforschung der PLA2G6-assoziierten Neurodegeneration (PLAN) gefördert werden soll. Für diese Förderinitiative, die...
Globale Zusammenarbeit führt zu Fortschritten in der MPAN-Forschung
Im November 2022 vergab Hoffnungsbaum e.V. zusammen mit den Schwesterorganisationen NBIA Disorders Association (NBIA DA) in den USA, Associazione Italiana Sindromi Neurodegenerative da Accumulo di Ferro (AISNAF) in Italien und Stichting Ijzersterk in den Niederlanden...
CoA Therapeutics bricht Klinische Studie für PKAN ab
Schweren Herzens teilen wir der Gemeinschaft mit, dass CoA Therapeutics beschlossen hat, die klinische Studie zu BBP-671, dem Wirkstoff, den das Unternehmen als potenzielle Behandlung für Pantothenat-Kinase-assoziierte Neurodegeneration (PKAN) entwickelt hatte,...
Zwei BPAN-Forschungsprojekte durch den MDBR 2023 mit je $60.000 gefördert
Der 10. jährliche Million Dollar Bike Ride (MDBR), der vom Orphan Disease Center der University of Pennsylvania veranstaltet wurde, führte dazu, dass zwei NBIA-Forschende jeweils ein Forschungsstipendium von 60.000 US-Dollar für die Erforschung der...
Vorantreiben der PKAN-Gentherapie: eine gemeinschaftliche Initiative
Die Erforschung einer Gentherapie für Pantothenat-Kinase-assoziierten Neurodegeneration (PKAN) schreitet dank des Engagements erfahrener Forscher und neu gegründeter Partnerschaften weiter voran. Im Jahr 2019 wurde ein bedeutender Schritt in der PKAN-Forschung...
NBIAcure bereitet Antrag auf FDA-Zulassung für CoA-Z vor
NBIAcure, ein Forschungsteam unter der Leitung von Dr. Susan Hayflick und Dr. Penny Hogarth, das an der Oregon Health & Science University (OHSU) angesiedelt ist, hat der Gemeinschaft der Pantothenat-Kinase-assoziierten Neurodegeneration (PKAN) ein wichtiges...
Update on the CoA-Z clinical trial
Over the past several months, the OHSU CoA-Z study team has shared the initial study results with all CoA-Z study participants and their families, as well as the broader NBIA community of families, friends, clinical providers and supporters. It follows...
NBIA International Scientific Conference in Poland
On October 19 and 20, 2023, a BPAN workshop, an NBIA Alliance meeting and an international NBIA scientific conference were held in Warsaw, Poland. There, researchers, physicians and patient representatives from many countries came together to discuss the...
Videos of the NBIA Family Conference 2023 in the USA online
For the first time since the pandemic, the NBIA Disorders Association hosted the 12th NBIA International Family Conference in the United States. For 4 days from May 18 to 21, 2023, a total of 70 NBIA families and 41 speakers, including some NBIA experts, came to Houston, Texas...
Insights into BPAN research at the family conference in the USA
BPAN families attending the NBIA Disorders Association (NBIADA) Family Conference in Houston, Texas, in May received updates on BPAN research from four researchers, beginning with Kira Anderson, a study coordinator with the NBIA Disorders Association (NBIADA)....
MDBR sets donation record and makes 2 scholarships possible
The NBIA Disorders team and NBIA families raised a record amount for BPAN research this year as part of the University of Pennsylvania's (UPenn) Million Dollar Bike Ride (MDBR). You can find more information about this charity bike race here:...
BPAN researcher develops stem cell model and awaits funding for planned drug screening
Dr. Paul Lockhart of the Murdoch Children's Research Institute in Melbourne, Australia, says that while his BPAN research has developed an important "brain cell" model using stem cells from affected BPAN individuals, his next step - the...
Cycling for BPAN research - Million Dollar Bike Ride 2023
This year, the Million Dollar Bike Ride (MDBR) at the University of Pennsylvania in Philadelphia is once again raising funds for research into rare diseases. The 10th edition of the charity bike race will take place on June 10, 2023....
Fundraising campaign by the Mühlacker Lions Club for Hoffnungsbaum e.V.
Mühlacker, December 2022: As part of a club evening organized by the Mühlacker Lions Club, board member Hoffnungsbaum e.V. Board member Tiemo Durm had the opportunity to give a presentation about the club and its aims and background. The contents were well received by the Lions Club...
International NBIA Symposium held in Switzerland in October 2022
In 2020, the last NBIA scientists' meeting took place only online due to the pandemic. In October 2022, for the first time since 2017, numerous actors in NBIA research finally met in person again for 3 days for the 8th International NBIA Symposium in...
Care guidelines for PLAN/INAD are now in progress
Thanks to the support of four organisations funding the project, consensus guidelines for treatment and care in a form of NBIA known as PLAN or PLA2G6-associated guidelines are now available.
INAD gene therapy is one step closer
Work on a gene therapy for infantile neuroaxonal dystrophy, called INAD, got a big boost in October when a London-based biotech firm announced its intention to help improve the...
PKAN study with CoA-Z completed in the USA
Oregon Health & Science University in Portland (USA) conducted the first clinical trial for PKAN patients in the USA from 2019 to 2022 with a new drug called "CoA-Z" for the treatment of PKAN. This first part of the trial has now been...
Fernsehbeitrag auf 3sat zu seltenen Erkrankungen und BPAN
Zum Tag der Seltenen Erkrankungen, dem 28.02.2023, widmete sich die Wissenschaftssendung NANO des Senders 3sat den Seltenen am Beispiel BPAN. Im Rahmen der Sendung war ein Filmteam bei Familie Nielbock mit Tochter Milly (https://www.millys-mission.de) zu Hause....
Two MPAN project grants totaling $140,000 awarded
Hoffnungsbaum e.V. in conjunction with three sister organizations in Europe and the US, has awarded two MPAN grants to advance research priorities in the field of mitochondrial membrane protein-associated neurodegeneration (MPAN)...
Mulled wine stand for the benefit of Hoffnungsbaum and Team Bananenflanke
The Sandbox Friends, Melanie Schratzenstaller, Michael Bogner, Stephan Thalhammer, Stefan Huber, Ramona Klement and Lisa Kaltenecker, from Eberspoint (south of Landshut) organized a mulled wine stand again on the first weekend of December after a break of two years...
December 7, 2022, online lecture: The Gailinger concept for dealing with swallowing disorders
I was able to get to know the "Gailinger concept for dealing with swallowing disorders (not only) in children" during a rehabilitation stay of my son at the Hegau Youth Office. Our son has benefited a lot from it and so I am happy that we have Christina Rauber (MSc and speech therapist)...
October 12, 2022, online lecture: Understanding hereditary developmental disorders better - what you can learn from the natural course of the disease
Steffen Syrbe is a pediatric neurologist and Professor of Pediatric Epileptology at Heidelberg University Hospital. He has been working with children with neurodevelopmental disorders for over 15 years. During this time, he has developed a strong interest in genetic causes...
8th International Symposium on NBIA in Switzerland
NBIA scientists will meet to share their research from October 13-15 in Lausanne, Switzerland, at the 8th International NBIA Symposium. More than 20 scientists and physicians from all over the world will present the results of their NBIA projects in...
Research project leads to a stem cell model of FAHN
A German team of scientists, who received a $45,000 research grant from the NBIA Disorders Association in 2020, has successfully produced a stem cell model of FAHN to help researchers better understand the disease and how it can be treated.
Pilot Grant in the amount of $69,775 announced for BPAN research
The Million Dollar Bike Ride 2022 (more information on this fundraising campaign) raised $69,775, which the Orphan Disease Center is now offering for a research project on BPAN. Researchers can apply for a pilot project at the following link.
Cycling for BPAN - Million Dollar Bike Ride 2022 a complete success again!
Video: NBIA DA It worked again - in 2022, the Million Dollar Bike Ride (MDBR, https://www.milliondollarbikeride.org/) of the University of Pennsylvania in Philadelphia was able to far exceed the US$ 20,000 mark: Almost US$ 39,000 was raised...
NBIA Family Conference 2022 postponed!
Hoffnungsbaum e.V. wanted to host the 9th NBIA Family Conference in Germany in September 2022 at the Heilbronn Youth Hostel. We were very much looking forward to finally being able to get an in-person meeting of NBIA families again after two years of pandemic.
July 6, 2022, online lecture: Myofasciotomy - a minimally invasive treatment for shortened muscles
NBIA disorders are often accompanied by restricted movement, alternating muscle tension and involuntary cramps (dystonia), causing the muscles to become increasingly shortened. Under certain conditions, myofasciotomy can provide some relief.
Press release from CoA Therapeutics on Phase 1 study for PKAN
We hereby issue the following press release from CoA Therapeutics: "CoA Therapeutics and BridgeBio Pharma Present Data from Phase 1 Study in Healthy Subjects to Support Development of BBP-671 for PKAN and Organic Acidemias On May 26,...
CoA Therapeutics presents timeline towards PKAN clinical trial
CoA Therapeutics, a BridgeBio affiliated company, has completed a Phase I study in healthy volunteers evaluating the safety, tolerability and drug-like properties of BBP-671. We present the data from healthy volunteers...
Survey helps prepare clinical trial for PKAN patients
The Californian company CoA Therapeutics is currently preparing a clinical trial with a new drug for PKAN patients. In order to make this study as patient-oriented as possible, CoA Therapeutics developed a survey last year in which the...
German-British family takes up the fight with BPAN
Kelly Sayers and Oliver Feiler are parents of two children: Max (8 years) and Emily (5 years). The family lives near London, England. 1 ½ years ago, they received the devastating news that Emily had BPAN. BPAN...
Board member Noah Rusch gives an interview on Rare Disease Day
Noah Rusch gives insights into the challenges and family life with his son Laurin, who suffers from BPAN, in an interview. The interview was published by the Munich Outpatient Children's Hospice Foundation to mark Rare Disease Day 2022:...
Million Dollar Bike Ride research grant awarded for BPAN
The Center for Rare Diseases at the University of Pennsylvania, supported by the NBIA DA, has awarded a research grant to study the role of iron in the NBIA disease BPAN. The $66,366 grant will be awarded to Young-Ah Seo of the...
Current call for MPAN funding reflects clearly defined priorities
Hoffnungsbaum e.V. is partnering with three sister organizations on a recent call for funding of up to USD 145,000 for one two-year or two one-year MPAN research projects:...
Call for proposals on MPAN research open by May 2, 2022
Associazione Italiana Sindromi Neurodegenerative da Accumulo di Ferro (AISNAF, Italy), Hoffnungsbaum e.V. (HoBa, Germany), NBIA Disorders Association (NBIADA, USA), and Stichting Ijzersterk (The Netherlands) are soliciting the submission of research projects by...
Generational change in the Management Board of Hoffnungsbaum
On 21.11.2021, the annual general meeting of Hoffnungsbaum e.V. (HoBa) took place - with groundbreaking decisions for the future of our NBIA patient organization through the completion of the generational change in the association's management and the reorganization...
Guide with recommendations for the treatment of BPAN available
Researchers from various medical institutions around the world, with the support of affected families, have recently published a guide to the treatment of beta propeller protein-associated neurodegeneration (BPAN). The publication serves as a...
New BPAN mouse model from Munich now available for researchers
With the publication of a long-awaited paper on a BPAN mouse model, researchers around the world now have access to these mice for study. Scientists led by Dr. Holger Prokisch from the Technical University of Munich have developed a...
PKAN drug screening at Yale University
Since July 2021, a new one-year PKAN research project has been underway at Yale University, New Haven (USA) under the direction of Professor Choukri Ben Mamoun. The project, entitled: "A high-throughput screen for PKAN-revising agents", is being carried out as part of...
RARE-X: A new, secure database for exchanging BPAN health data
BPAN sufferers and their families are invited to post health information about the disease on the new, secure RARE-X platform. This database will be used to collect information about rare diseases such as BPAN and make it available for research.
Million Dollar Bike Ride with the support of Hoffnungsbaum Successful again
Also this year, the charity bike race of the University of Pennsylvania in Philadelphia in the USA, the Million Dollar Bike Ride 2021, was held virtually. It is used to collect donations for research into rare diseases, which this year will be funded by 52...
Lena Burbulla discovers new possible BPAN disease mechanisms
Prof. Dr. Lena Burbulla recently successfully completed a project to research beta propeller protein-associated neurodegeneration (BPAN). The project, funded in 2019 with a total budget of €65,000 by Aisnaf, NBIADA and Hoffnungsbaum e.V. jointly...
News from CoA-Therapeutics: Phase 1 trial with new drug for PKAN has started
The latest news from CoA Therapeutics, Inc., a subsidiary of BridgeBio Pharma, Inc. is that the Californian company is working on a new potential therapy for PKAN patients. "CoA" stands for Coenzyme A and the company's name already...
NBIA Disorders Association family conference sessions now available online
The virtual conference platform is now open to all, free of charge, so that interested families with English language skills can watch those sessions that are available as recordings. The program includes patient-focused research updates...
Cycling for Laurin as part of the Million Dollar Bike Ride
As part of the Million Dollar Bike Ride (MDBR), we started a fundraiser in our backyard for BPAN. Friends, relatives and acquaintances were invited to come by by bike and bring a donation. In return, there was fresh...
Cycling for BPAN – Million Dollar Bike Ride 2021
It's that time of year again: The Million Dollar Bike Ride (MDBR) of the University of Pennsylvania in Philadelphia will take place for the 8th time until June 12, 2021. Due to the pandemic, this charity bike race will again take place not only in the USA, but virtually all over the...
PKAN family launches fundraising campaign - Newspapers report
Shortly after their 11-year-old daughter Vivienne was diagnosed with PKAN last year, the Helmold family set out to collect donations for the PKAN Fund at Hoffnungsbaum for research into one of the most common forms of NBIA, because nothing...
First online lecture: 28 participants at lecture on BPAN research in Tübingen
On February 10, 2021, Hoffnungsbaum e.V. launched a new online service for our families, especially in German-speaking countries. There will be a loose sequence of video meetings on various topics relevant to NBIA victims....
Review of TIRCON and its significance for NBIA research and care
A retrospective article on TIRCON (Treat Iron-Related Childhood-Onset Neurodegeneration) has now been published in the journal "Frontiers in Neurology" on the subject of "Networks for movement disorders". From 2011 to 2015, TIRCON is a project funded by the European Union...
Researcher at Yale University works on new therapeutic approach for PKAN
We have received news from the USA that a potential new treatment option for PKAN is being researched at Yale University. This new approach is still in the very early stages of development and a great deal of scientific work and time is still required to...
Hoffnungsbaum Newsletter 2020
We have once again put together a newsletter for you in 2020. It contains information on the association's activities in 2020 and an outlook for next year. If you would like to be kept up to date, please subscribe to our online newsletter.
PKAN family launches another fundraising campaign
As at the beginning of the year, the Bianchi family is once again actively collecting donations for PKAN research during Advent, as their 3-year-old son Giulio suffers from this form of NBIA. In their home town of Kronau, parents Melanie and Tony have set up a stand with...
Record number of participants at the 7th International Scientific NBIA Symposium
Authors of the original article: Patricia Wood and Angelika Klucken 160 participants from 26 countries attended the 7. International Symposium on NBIA and Related Diseases, which was held as a virtual event for the first time. Since online access makes it easy to...
Interim results of four BPAN research projects published
The NBIA Disorders Association, our sister organization in the USA, reports in its fall newsletter on the progress made so far in four research projects on beta propeller protein-associated neurodegeneration (BPAN). BPAN, one of the...
Results of the Hoffnungsbaum survey 2020
In the period August - September 2020 Hoffnungsbaum e.V. conducted a broad-based opinion survey among all association members and NBIA families in Germany, Austria and Switzerland with whom we are in contact. The aim of the survey was to explore...
Spontaneous donation campaign achieves more than 15.000 € for PKAN research
Last year, the Bianchi family received a diagnosis of PKAN for their son Giulio, who is now 3 years old. As a result, the parents launched a fundraising campaign via PayPal and a Christmas card campaign in their private lives for the benefit of PKAN research and are...
Hoffnungsbaum e.V. finances MPAN project at Helmholtz Zentrum München
Hoffnungsbaum e.V. awards funding of € 151,540 to Dr. Arcangela Iuso and her team from the Institute of Neurogenomics at the Helmholtz Centre in Munich. The funding will be used to finance a 27-month research project aimed at uncovering significant...
Research team from Rostock receives grant for FAHN-research
Our sister organization in the U.S., the NBIA Disorders Association, has a grant to research the NBIA variant FAHN awarded $45,000 to a team of German scientists who collected stem cells from patients with FAHN-Disease investigated....
Hoffnungsbaum and Team BPAN Germany contribute to the success of the Million Dollar Bike Ride
This year, the seventh edition of the University of Pennsylvania charity bike race in Philadelphia in the USA, the Million Dollar Bike Ride 2020, took place under difficult conditions. It is used to collect donations for the research of rare...
NBIA Symposium 2020 takes place online
The 7. International Symposium on NBIA and Related Diseases will now be held virtually from September 30 to October 3, 2020. Save the date for our virtual symposium! • Update on new findings in NBIA diseases...
7th International NBIA Symposium in Lausanne postponed!
Postponed to autumn 2021 due to the Corona situationThe 7th International NBIA Symposium will unfortunately not take place from 1 – 3 October 2020 in Lausanne, Switzerland and will be postponed to autumn 2021. For three days, scientists and physicians from...
Hoffnungsbaum Information letter at the end of 2019
Hoffnungsbaum e.V. sent out a newsletter as a print edition for the last time this winter, which is available for download here: Hoffnungsbaum-Infoletter-Winter-2019 In the future, we will mainly be able to use our new website or our website.
New research project on BPAN in Tübingen
Tübingen research group led by Professor Tassula Proikas-Cezanne and Hoffnungsbaum e.V. Joining forces in the research of BPAN Deciphering the causes of rare, neurodegenerative diseases is a lengthy process that is difficult for those affected with a lot of...
PKAN clinical trial in USA and Canada to start in December 2019
For several years, the research teams of Dr. Susan Hayflick (University of Oregon, Portland, USA) and Prof. Ody Sibon (University of Groningen, NL) have been working on a new drug for PKAN and the further decoding of PKAN disease mechanisms. Now...
As Hoffnungsbaum representative at the Autophagy Congress in New York
Markus Nielbock was invited to a workshop in New York by Prof. Christian Behl, head of the Institute of Pathobiochemistry at the University of Mainz.
Autophagy Congress in Tübingen with panel discussion
On 24 September 2019, as the father of a daughter with BPAN and in my capacity as Vice-Chairman of Hoffnungsbaum e.V., participated in a public panel discussion on "Autophagy and its implications for health and neurodegeneration". They...
First results from FORT study for PKAN
The pharmaceutical company Retrophin had developed the drug Fosmetpantotenate for the treatment of PKAN. This was tested for safety and efficacy in a placebo-controlled and multicenter double-blind clinical trial (FORT trial).
BPAN research project funded: Iron and neurodegeneration
In 2019, our Italian sister organisation AISNAF once again led an international call for BPAN research. This was completed at the end of July with the financing of a new research project on BPAN. Thanks to the...
PKAN: Results of clinical trial with deferiprone
From 2011 to 2015, the international NBIA research project TIRCON (Treat Iron-Related Childhood-Onset Neurodegeneration) was funded by the European Union. One of the main TIRCON sub-projects was a clinical study to investigate the safety of...
Charity campaign "Together strong for Maya" for MPAN research
A large charity event was held in Lauterbach on June 1, 2019. The fate of 12-year-old Maya, who is suffering from the NBIA variant MPAN, moves the whole town, many other people in Saarland and beyond. They all want Maya and...
MPAN can also be inherited in an autosomal dominant manner
The NBIA research group of Dr. Susan Hayflick at Oregon Health & Science University in Portland (OR, USA) has discovered that mitochondrial membrane protein-associated neurodegeneration (MPAN) can also be inherited in an autosomal dominant manner. MPAN belongs...
Financing of a second PKAN project following the 2018 call
Dario Finazzi and his team at the University of Brescia are being awarded for their research on PKAN zebrafish by AISNAF, Hoffnungsbaum e.V. and NBIA Disorders Association. As part of the 2018 Joint International Funding Initiative, Lauriel Earley's...
Call for proposals for the funding of NBIA research projects
The NBIA patient organisations AISNAF (Italy), Hoffnungsbaum e.V.,(Germany) and NBIA Disorders Association (USA) announce a joint funding initiative to award research grants for the study of the following two NBIA variants:...
Half marathon becomes BPAN charity run
Participants of the MPIA at this year's SAS half marathon in Heidelberg, Image: MPIA/J. Henshaw On April 7, 2019, 14 colleagues of our board member Markus Nielbock from the Max Planck Institute for Astronomy (MPIA) took part in the...
Rhein-Neckar-Zeitung reports on Milly's mission
February 28 is International Rare Disease Day. Numerous events have been taking place around the world for days now to mark the occasion. Media interest is also high. The aim of Rare Disease Day is to...
News from Maya and the MPAN fundraising campaign
In December, we presented the Matthiesen family's fundraising campaign for MPAN research. Maya herself actively supports this crowdfunding campaign, which was launched by her parents shortly after her diagnosis. Together with her older brother, she...
Rare Disease Day in Heidelberg and Ulm 2019
February 28 is once again Rare Disease Day, which is celebrated all over the world. In collaboration with the Alliance of Chronic Rare Diseases - ACHSE e.V., the umbrella organization for rare diseases in Germany, a number of events will be held to mark the occasion....
Three NBIA Patient Organizations Fund PKAN Gene Therapy Project
The first international call for research projects by AISNAF within the framework of a joint initiative with Hoffnungsbaum e.V. (Germany) and the NBIA Disorders Association (USA) has been completed: A project to develop a gene therapy for PKAN...
Matthiesen family launches fundraising campaign for MPAN research
Saarländischer Rundfunk (SR) drew attention to the family's situation and their fundraising campaign in a sensitive television report on November 29 as part of its "Wir im Saarland" magazine program. It was only in September that the Matthiesen family had been diagnosed with...
8th NBIA Family Conference in Germany 2018
From 21 to 22 September 2018, our 8th NBIA Family Conference took place in Düsseldorf with more than 75 participants. In addition to family members and those affected, these included doctors, scientists and a team of youth workers. Most of the guests...
News from Milly and her mission
On 22.12.2017, Rhein-Neckar-Fernsehen (RNF) presented Milly and her family in the program RNFlife: http://www.rnf.de/mediathek/video/heidelberg-wie-die-kleine-emilia-gegen-ihre-gen-krankheit-ankaempft/ Emilia has BPAN. About a year ago, her parents...
Progress at NBIA Symposium & NBIA Alliance Meeting
At the 6th International Symposium on Neurodegeneration with Iron Storage in the Brain (NBIA) and Related Diseases, the latest research findings were presented. Around 70 doctors, scientists and patient representatives from 12 countries attended...
TIRCON project ended with final conference in October 2015
In October 2015, the international research project TIRCON ("Treat Iron-Related Childhood-Onset Neurodegeneration"), which was funded by the European Union for four years, ended as planned. This event was marked by a grand final conference on 15 and 15 December.
Hertie Foundation Commitment Award goes to Hoffnungsbaum e.V.
The non-profit Hertie Foundation has once again awarded the prize for commitment and self-help. The prize honors exemplary activities by self-help groups and particularly committed people in the field of multiple sclerosis and neurodegenerative diseases.
