BPAN - beta-propeller protein-associated neurodegeneration.

An updated disease description for BPAN is currently in progress. Please be patient a little longer.

The best information on BPAN at the moment can be found here:

Current contributions to BPAN

Here you can find current information about this disease variant.

Pilot Grant of $69,775 announced for BPAN research.

Pilot Grant of $69,775 announced for BPAN research.

The Million Dollar Bike Ride 2022 (Learn more about this fundraiser) raised $69,775, which has now been put out to bid by the Orphan Disease Center for a research project on BPAN. Researchers can apply for a pilot at the following link....

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German-British family takes up the fight with BPAN

German-British family takes up the fight with BPAN

Kelly Sayers and Oliver Feiler are parents of two children: Max (8 years old) and Emily (5 years old). The family lives near London, England. 1 ½ years ago, they received the devastating news that Emily had BPAN. BPAN...

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