Cycling for BPAN research - Million Dollar Bike Ride 2023

Once again this year, the Million Dollar Bike Ride (MDBR) at the University of Pennsylvania in...

International NBIA Symposium took place in Switzerland in October 2022

In 2020, the last NBIA scientists' meeting was only held online due to the pandemic. In October 2022...

Two MPAN project grants totaling $140,000 awarded

Hoffnungsbaum e.V. together with three sister organizations in Europe and the USA, has established two...

Mulled wine stand for the benefit of Hoffnungsbaum and Team Bananenflanke

The Sandbox Friends, Melanie Schratzenstaller, Michael Bogner, Stephan Thalhammer, Stefan Huber,...

8th International Symposium on NBIA in Switzerland

NBIA scientists meet to share their research from October 13-15 in...

Research project leads to a stem cell model of FAHN

A German team of scientists who received an award from the NBIA Disorders Association in...

Pilot Grant in the amount of $69,775 announced for BPAN research

As part of the Million Dollar Bike Ride 2022 (more information on this fundraising campaign), $69,775...

NBIA Family Conference 2022 postponed!

Hoffnungsbaum e.V. wanted to hold the 9.... in the Heilbronn youth hostel in September 2022.

July 6, 2022, online lecture: Myofasciotomy - a minimally invasive treatment for shortened muscles

NBIA disorders are often associated with restricted movement, changing muscle tension and...


Here you will find current articles on various topics and our newsletter.

Latest posts

Here you will see the most recent posts from all categories.

News from research

Here you will find up-to-date information from NBIA research and related research areas.

Dates and events

Here you will find current dates, but also reports on past events.

Online lectures

As part of online lectures, we invite experts on various topics.


Here you will find appeals for donations that need your support.

Association's work

Here you will find current articles on general club activities.


Here you can subscribe to our newsletter and view newsletters that have already been sent.

Subscribe to our Hoffnungsbaum newsletter!

With our newsletter e-mails you will receive valuable information about NBIA. If you would like to receive additional information on individual NBIA variants or special information for researchers/clinicians in addition to the general newsletter, please click here: Subscribe to additional information

Privacy policy

You have successfully registered!