Online lectures
Here you will find an overview of online lectures organized by Hoffnungsbaum . If the lecture is still in the future, you can register online.
December 7, 2022, Online Lecture: The Gailinger Concept for Dealing with Dysphagia.
I was able to get to know the "Gailinger concept for dealing with swallowing disorders (not only) in children" during a rehabilitation stay of my son in the Hegau-Jugendwerk. Our son has benefited a lot from it and so I am happy that we have Christina Rauber (MSc and speech therapist)...
October 12, 2022, online lecture: Understanding hereditary developmental disorders better - what can be learned from the natural history of the disease.
Steffen Syrbe is a pediatric neurologist and professor of pediatric epileptology at Heidelberg University Hospital. He has been working with children with neurodevelopmental disorders for over 15 years. During this time, he has developed a strong interest in genetic causes of...
July 6, 2022, Online Lecture: Myofasciotomy - a minimally invasive treatment for shortened muscles.
NBIA disorders are often associated with restricted movement, changing muscle tension and involuntary spasms (dystonia), causing the muscles to become progressively shorter. Under certain conditions, myofasciotomy can provide some relief in this...
First Online Lecture: 28 Participants at Lecture on BPAN Research in Tübingen
On February 10, 2021 Hoffnungsbaum e.V. launched a new online service offering for our families, especially in German-speaking countries. There will be a loose sequence of video meetings on various topics relevant to NBIA sufferers....
