Online lectures
Here you will find an overview of online lectures that Hoffnungsbaum organized. If the lecture is still in the future, you can register online.
Videos of the NBIA Family Conference 2023 in the USA online
For the first time since the pandemic, the NBIA Disorders Association hosted the 12th NBIA International Family Conference in the United States. For 4 days from May 18 to 21, 2023, a total of 70 NBIA families and 41 speakers, including some NBIA experts, came to Houston, Texas...
December 7, 2022, online lecture: The Gailinger concept for dealing with swallowing disorders
I was able to get to know the "Gailinger concept for dealing with swallowing disorders (not only) in children" during a rehabilitation stay of my son at the Hegau Youth Office. Our son has benefited a lot from it and so I am happy that we have Christina Rauber (MSc and speech therapist)...
October 12, 2022, online lecture: Understanding hereditary developmental disorders better - what you can learn from the natural course of the disease
Steffen Syrbe is a pediatric neurologist and Professor of Pediatric Epileptology at Heidelberg University Hospital. He has been working with children with neurodevelopmental disorders for over 15 years. During this time, he has developed a strong interest in genetic causes...
July 6, 2022, online lecture: Myofasciotomy - a minimally invasive treatment for shortened muscles
NBIA disorders are often accompanied by restricted movement, alternating muscle tension and involuntary cramps (dystonia), causing the muscles to become increasingly shortened. Under certain conditions, myofasciotomy can provide some relief.
First online lecture: 28 participants at lecture on BPAN research in Tübingen
On February 10, 2021, Hoffnungsbaum e.V. launched a new online service for our families, especially in German-speaking countries. There will be a loose sequence of video meetings on various topics relevant to NBIA victims....
