Dates and events
Here you will find current dates, but also reports on events that have already taken place.
Radfahren für BPAN-Forschung – Million Dollar Bike Ride 2023
Auch in diesem Jahr sammelt der Million Dollar Bike Ride (MDBR) der University of Pennsylvania in Philadelphia Spenden für die Erforschung seltener Erkrankungen. Die 10. Ausgabe des Benefizradrennens wird am 10. Juni 2023...
December 7, 2022, Online Lecture: The Gailinger Concept for Dealing with Dysphagia.
I was able to get to know the "Gailinger concept for dealing with swallowing disorders (not only) in children" during a rehabilitation stay of my son in the Hegau-Jugendwerk. Our son has benefited a lot from it and so I am happy that we have Christina Rauber (MSc and speech therapist)...
October 12, 2022, online lecture: Understanding hereditary developmental disorders better - what can be learned from the natural history of the disease.
Steffen Syrbe is a pediatric neurologist and professor of pediatric epileptology at Heidelberg University Hospital. He has been working with children with neurodevelopmental disorders for over 15 years. During this time, he has developed a strong interest in genetic causes of...
8th International Symposium on NBIA in Switzerland
NBIA scientists will meet to share their research Oct. 13-15 in Lausanne, Switzerland, as part of the 8th International NBIA Symposium. More than 20 scientists and physicians from around the world will present the results of their NBIA projects,...
NBIA Family Conference 2022 postponed!
Hoffnungsbaum e.V. wanted to organize the 9th NBIA Family Conference in Germany in September 2022 in the youth hostel of Heilbronn. We were very much looking forward to finally having a face-to-face meeting of NBIA families again after two years of the pandemic....
Call for proposals on MPAN research open by May 2, 2022
Associazione Italiana Sindromi Neurodegenerative da Accumulo di Ferro (AISNAF, Italy), Hoffnungsbaum e.V. (HoBa, Germany), NBIA Disorders Association (NBIADA, USA), and Stichting Ijzersterk (The Netherlands) are soliciting the submission of research projects by...
