7 December 2022, Online lecture: The Gailinger concept for dealing with swallowing disorders

The "Gailinger Concept for Dealing with Swallowing Disorders (not only) in Children" I could read at...

8th International Symposium on NBIA in Switzerland

NBIA scientists will meet to share their research Oct. 13-15 in...

Research project leads to a stem cell model of FAHN

A German team of scientists who received a 2020 grant from the NBIA Disorders Association...

Pilot Grant of $69,775 announced for BPAN research.

The Million Dollar Bike Ride 2022 (Learn more about this fundraiser) raised $69,775 in...

NBIA Family Conference 2022 postponed!

Hoffnungsbaum e.V. wanted to hold the 9.... in the Heilbronn youth hostel in September 2022.

6 July 2022, Online lecture: Myofasciotomy - a minimally invasive treatment for shortened muscles

NBIA disorders are often associated with restricted movement, changing muscle tension and...

Press release from CoA Therapeutics on Phase 1 study for PKAN

We hereby publish the following press release from CoA Therapeutics: "CoA Therapeutics and...

CoA Therapeutics unveils timeline on path to PKAN clinical trial

CoA Therapeutics, a company affiliated with BridgeBio, has completed a Phase I study in healthy...

Survey helps prepare clinical trial for PKAN patients

The Californian company CoA Therapeutics is currently preparing a clinical trial with a new...

Dates and events

Here you will find current dates, but also reports on events that have already taken place.

8th International Symposium on NBIA in Switzerland

8th International Symposium on NBIA in Switzerland

NBIA scientists will meet to share their research Oct. 13-15 in Lausanne, Switzerland, as part of the 8th International NBIA Symposium. More than 20 scientists and physicians from around the world will present the results of their NBIA projects,...

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NBIA Family Conference 2022 postponed!

Hoffnungsbaum e.V. wanted to organise the 9th NBIA Family Conference in Germany in September 2022 in the youth hostel of Heilbronn. We were very much looking forward to finally having a face-to-face meeting of NBIA families again after two years of the pandemic....

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Call for proposals on MPAN research open by May 2, 2022

Call for proposals on MPAN research open by May 2, 2022

Associazione Italiana Sindromi Neurodegenerative da Accumulo di Ferro (AISNAF, Italy), Hoffnungsbaum e.V. (HoBa, Germany), NBIA Disorders Association (NBIADA, USA), and Stichting Ijzersterk (The Netherlands) are soliciting the submission of research projects by...

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