Update on the CoA-Z clinical trial

In den vergangenen Monaten hat das OHSU CoA-Z-Studienteam die ersten Studienergebnisse mit allen...

Internationale wissenschaftliche NBIA-Konferenz in Polen

Am 19. und 20. Oktober 2023 fand in Warschau, Polen ein BPAN-Workshop, ein NBIA-Alliance-Treffen...

Videos of the NBIA Family Conference 2023 in the USA online

For the first time since the pandemic, the NBIA Disorders Association held the 12th International...

Einblicke in die BPAN-Forschung auf der Familienkonferenz in den USA

BPAN-Familien, die im Mai an der NBIA-Familienkonferenz der NBIA Disorders Association (NBIADA) in...

MDBR sets donation record and makes 2 scholarships possible

This year, the "NBIA Disorders" team and NBIA families have been involved in the Million Dollar Bike...

BPAN-Forscher entwickelt Stammzellmodell und wartet auf Finanzierung für geplantes Medikamentenscreening

Dr. Paul Lockhart vom Murdoch Children's Research Institute in Melbourne, Australien, sagt, dass...

Dates and events

Here you will find current dates, but also reports on events that have already taken place.

8th International Symposium on NBIA in Switzerland

8th International Symposium on NBIA in Switzerland

NBIA scientists will meet to share their research from October 13-15 in Lausanne, Switzerland, at the 8th International NBIA Symposium. More than 20 scientists and physicians from all over the world will present the results of their NBIA projects in...

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NBIA Family Conference 2022 postponed!

Hoffnungsbaum e.V. wanted to organize the 9th NBIA Family Conference in Germany in September 2022 at the youth hostel in Heilbronn. We were very much looking forward to finally having a face-to-face meeting of NBIA families again after two years of the pandemic.

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Call for proposals on MPAN research open by May 2, 2022

Call for proposals on MPAN research open by May 2, 2022

Associazione Italiana Sindromi Neurodegenerative da Accumulo di Ferro (AISNAF, Italy), Hoffnungsbaum e.V. (HoBa, Germany), NBIA Disorders Association (NBIADA, USA), and Stichting Ijzersterk (The Netherlands) are soliciting the submission of research projects by...

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