Funding

Here you can see from which sources the financing of our association is composed. The two most important pillars are GKV-Gemeinschaftsförderung and donations. In addition, we receive membership fees and project-related funding from time to time.

Donations for research funding since 2014

We use 100% of donations for Research funding. Thanks to the great commitment of individual NBIA families (see also Fundraising), our volume of donations has risen sharply in recent years, which, in view of the increasing number of NBIA variants is also urgently needed. The donations are mostly earmarked for the targeted promotion of research into an NBIA variant.

  • 2021: 42.681 €
  • 2020: 74.391 €
  • 2019: 150.899 €
  • 2018: 30.099 €
  • 2017: 12.715 €
  • 2016: 11.233 €
  • 2015: 6.545 €
  • 2014: 6.635 €

We would like to take this opportunity to express our sincere thanks to all donors and the NBIA families who collected donations!

GKV-Gemeinschaftsförderung for costs of association work since 2015

The basis for financing our self-help organization is formed by the lump-sum subsidies from the members of the "GKV-Gemeinschaftsförderung Self-help at the federal level". With these annual grants we cover a large part of the costs for our daily association work, which would otherwise not be possible. In the last years received Hoffnungsbaum e.V. the following sums:

  • 2021: 16.000 €
  • 2020: 16.000 €
  • 2019: 15.000 €
  • 2018: 13.000 €
  • 2017: 12.000 €
  • 2016: 11.000 €
  • 2015: 8.000 €

We would like to take this opportunity to thank the members of the "GKV-Gemeinschaftsförderung Selbsthilfe auf Bundesebene":

Other promotions

These organizations supported our association's work with subsidies - as a lump sum, or also project-related.

DAK Health

We thank you for supporting the strategy meetings of the Hoffnungsbaum board.

Technician health insurance

We would like to thank you for the financial support of our 8th NBIA Family Conference in Germany.

Kindness for Kids

We would like to thank you for the financial support of our 8th NBIA Family Conference in Germany.

European Commission

The project work of Hoffnungsbaum e.V. within the framework of TIRCON (Work Area 7: Dissemination) was funded by the European Commission (FP7/2007-2013, HEALTH-F2-2011, grant agreement 277984, TIRCON).

Fundraising appeals with proceeds going to Hoffnungsbaum

Mostly, it is dedicated NBIA parents who start fundraising appeals or even collect donations non stop.

German-British family takes up the fight with BPAN

German-British family takes up the fight with BPAN

Kelly Sayers and Oliver Feiler are parents of two children: Max (8 years old) and Emily (5 years old). The family lives near London, England. 1 ½ years ago, they received the devastating news that Emily had BPAN. BPAN...

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Cycling for Laurin as part of the Million Dollar Bike Ride

Cycling for Laurin as part of the Million Dollar Bike Ride

As part of the Million Dollar Bike Ride (MDBR), we started a fundraiser in our backyard at home in support of BPAN. Friends, relatives and acquaintances were invited to come by our house on their bikes and bring a donation. In return, there were fresh...

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Cycling for BPAN - Million Dollar Bike Ride 2021

Cycling for BPAN - Million Dollar Bike Ride 2021

It's that time again: The Million Dollar Bike Ride (MDBR) of the University of Pennsylvania in Philadelphia will take place for the 8th time until June 12, 2021. Due to the pandemic, this charity bike race will once again take place not only in the USA, but virtually all over the...

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PKAN family launches another fundraising campaign

PKAN family launches another fundraising campaign

As at the beginning of the year, the Bianchi family is now once again actively collecting donations during Advent for the benefit of PKAN research, as their 3-year-old son Giulio suffers from this form of NBIA. In their hometown Kronau, parents Melanie and Tony have set up a booth with...

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