Funding
Here you can see the sources from which the financing of our association is composed. The two most important pillars are the GKV-Gemeinschaftsförderung and donations. In addition, we receive membership fees and project-related funding.
Donations for research funding since 2014
We use 100% of donations for Research funding. Dank des großen Engagementes einzelner NBIA-Familien (siehe auch Fundraising) ist unser Spendenaufkommen in den Jahren 2019 und 2020 besonders hoch gewesen. Die Spenden sind meist zweckgebunden für die gezielte Förderung der Erforschung einer NBIA-Erkrankung.
- 2023: 36.924 €
- 2022: €25,011
- 2021: €42,681
- 2020: €74,391
- 2019: 150.899 €
- 2018: €30,099
- 2017: 12.715 €
- 2016: 11.233 €
- 2015: 6.545 €
- 2014: 6.635 €
We would like to take this opportunity to thank all donors and the fundraising NBIA families!
GKV-Gemeinschaftsförderung for costs of the association's work since 2015
Den Grundstock zur Finanzierung unserer Selbsthilfeorganisation bildet die pauschale Selbsthilfeförderung durch die GKV-Gemeinschaftsförderung Selbsthilfe auf Bundesebene. With these annual grants, we cover a large part of the costs for our daily association work, which would otherwise not be possible. In recent years, Hoffnungsbaum e.V. the following sums:
- 2023: 17.600 €
- 2022: 17.146 €
- 2021: 16.000 €
- 2020: 16.000 €
- 2019: 15.000 €
- 2018: 13.000 €
- 2017: 12.000 €
- 2016: 11.000 €
- 2015: 8.000 €
We would like to take this opportunity to thank the members of the "GKV-Gemeinschaftsförderung Self-help at the federal level":
All income and expenses
Here you can view our financial reports for the past years:
Prior to 2016, we published the financial reports as part of our newsletter:
Financial Report 2015 Newsletter No. 16
Financial Report 2014 Newsletter No. 13
Financial Report 2013 Newsletter No. 12
Financial Report 2012 Newsletter No. 11
Financial Report 2011 in Newsletter No. 10
Self-disclosures
As a member of ACHSE e.V., Hoffnungsbaum e.V. The "Principles of self-help for cooperation with persons under private and public law, organisations and commercial enterprises, especially in the health sector" by BAG SELBSTHILFE and FORUM in the PARITY. In this context, we publish an annual self-disclosure on income from cooperation with commercial enterprises:
Further Funding
These organizations supported our association's work with grants – lump sum or project-related.
DAK Health
We would like to thank you for your support of the strategy meetings of the Hoffnungsbaum-Board.
Technician Health Insurance
We would like to thank you for the financial support of our 8th NBIA Family Conference in Germany.
Kindness for Kids
We would like to thank you for the financial support of our 8th NBIA Family Conference in Germany.
European Commission
The project work of Hoffnungsbaum e.V. within the framework of TIRCON (Work Area 7: Dissemination) funded by the European Commission (FP7/2007–2013, HEALTH-F2–2011, grant agreement 277984, TIRCON)
Appeals for donations, the proceeds of which go to Hoffnungsbaum goes
Most of the time, it is dedicated NBIA parents who launch appeals for donations or even collect donations non-stop.
Aus einer Geschenkspende werden zwei
Seit einiger Zeit gibt es auf unserer Website die Möglichkeit, mit dem Spendenformular eine Geschenkspende zu generieren. Man spendet ganz normal, kann aber zusätzlich eine Urkunde mit verschiedenen Motiven generieren und einen Absender und Empfänger der Spende...
NBIA-Gentherapie Updates
Historische Spende von 1,2 Millionen Dollar gibt Treibstoff für PKAN-Gentherapie Eine beeindruckende Spende in Höhe von 1,2 Millionen Dollar hat es der PKAN-Gentherapie (Pantothenat-Kinase-assoziierten Neurodegeneration) ermöglicht, einen großen Schritt nach vorn zu...
MDBR sets donation record and makes 2 scholarships possible
The NBIA Disorders team and NBIA families raised a record amount for BPAN research this year as part of the University of Pennsylvania's (UPenn) Million Dollar Bike Ride (MDBR). You can find more information about this charity bike race here:...
Cycling for BPAN research - Million Dollar Bike Ride 2023
This year, the Million Dollar Bike Ride (MDBR) at the University of Pennsylvania in Philadelphia is once again raising funds for research into rare diseases. The 10th edition of the charity bike race will take place on June 10, 2023....
Fundraising campaign by the Mühlacker Lions Club for Hoffnungsbaum e.V.
Mühlacker, December 2022: As part of a club evening organized by the Mühlacker Lions Club, board member Hoffnungsbaum e.V. Board member Tiemo Durm had the opportunity to give a presentation about the club and its aims and background. The contents were well received by the Lions Club...
Mulled wine stand for the benefit of Hoffnungsbaum and Team Bananenflanke
The Sandbox Friends, Melanie Schratzenstaller, Michael Bogner, Stephan Thalhammer, Stefan Huber, Ramona Klement and Lisa Kaltenecker, from Eberspoint (south of Landshut) organized a mulled wine stand again on the first weekend of December after a break of two years...
Cycling for BPAN - Million Dollar Bike Ride 2022 a complete success again!
Video: NBIA DA It worked again - in 2022, the Million Dollar Bike Ride (MDBR, https://www.milliondollarbikeride.org/) of the University of Pennsylvania in Philadelphia was able to far exceed the US$ 20,000 mark: Almost US$ 39,000 was raised...
German-British family takes up the fight with BPAN
Kelly Sayers and Oliver Feiler are parents of two children: Max (8 years) and Emily (5 years). The family lives near London, England. 1 ½ years ago, they received the devastating news that Emily had BPAN. BPAN...
Million Dollar Bike Ride with the support of Hoffnungsbaum Successful again
Also this year, the charity bike race of the University of Pennsylvania in Philadelphia in the USA, the Million Dollar Bike Ride 2021, was held virtually. It is used to collect donations for research into rare diseases, which this year will be funded by 52...
Cycling for Laurin as part of the Million Dollar Bike Ride
As part of the Million Dollar Bike Ride (MDBR), we started a fundraiser in our backyard for BPAN. Friends, relatives and acquaintances were invited to come by by bike and bring a donation. In return, there was fresh...
Cycling for BPAN – Million Dollar Bike Ride 2021
It's that time of year again: The Million Dollar Bike Ride (MDBR) of the University of Pennsylvania in Philadelphia will take place for the 8th time until June 12, 2021. Due to the pandemic, this charity bike race will again take place not only in the USA, but virtually all over the...
PKAN family launches fundraising campaign - Newspapers report
Shortly after their 11-year-old daughter Vivienne was diagnosed with PKAN last year, the Helmold family set out to collect donations for the PKAN Fund at Hoffnungsbaum for research into one of the most common forms of NBIA, because nothing...
PKAN family launches another fundraising campaign
As at the beginning of the year, the Bianchi family is once again actively collecting donations for PKAN research during Advent, as their 3-year-old son Giulio suffers from this form of NBIA. In their home town of Kronau, parents Melanie and Tony have set up a stand with...
Spontaneous donation campaign achieves more than 15.000 € for PKAN research
Last year, the Bianchi family received a diagnosis of PKAN for their son Giulio, who is now 3 years old. As a result, the parents launched a fundraising campaign via PayPal and a Christmas card campaign in their private lives for the benefit of PKAN research and are...
Hoffnungsbaum and Team BPAN Germany contribute to the success of the Million Dollar Bike Ride
This year, the seventh edition of the University of Pennsylvania charity bike race in Philadelphia in the USA, the Million Dollar Bike Ride 2020, took place under difficult conditions. It is used to collect donations for the research of rare...
Charity campaign "Together strong for Maya" for MPAN research
A large charity event was held in Lauterbach on June 1, 2019. The fate of 12-year-old Maya, who is suffering from the NBIA variant MPAN, moves the whole town, many other people in Saarland and beyond. They all want Maya and...
Half marathon becomes BPAN charity run
Participants of the MPIA at this year's SAS half marathon in Heidelberg, Image: MPIA/J. Henshaw On April 7, 2019, 14 colleagues of our board member Markus Nielbock from the Max Planck Institute for Astronomy (MPIA) took part in the...
Rhein-Neckar-Zeitung reports on Milly's mission
February 28 is International Rare Disease Day. Numerous events have been taking place around the world for days now to mark the occasion. Media interest is also high. The aim of Rare Disease Day is to...
News from Maya and the MPAN fundraising campaign
In December, we presented the Matthiesen family's fundraising campaign for MPAN research. Maya herself actively supports this crowdfunding campaign, which was launched by her parents shortly after her diagnosis. Together with her older brother, she...
Matthiesen family launches fundraising campaign for MPAN research
Saarländischer Rundfunk (SR) drew attention to the family's situation and their fundraising campaign in a sensitive television report on November 29 as part of its "Wir im Saarland" magazine program. It was only in September that the Matthiesen family had been diagnosed with...
News from Milly and her mission
On 22.12.2017, Rhein-Neckar-Fernsehen (RNF) presented Milly and her family in the program RNFlife: http://www.rnf.de/mediathek/video/heidelberg-wie-die-kleine-emilia-gegen-ihre-gen-krankheit-ankaempft/ Emilia has BPAN. About a year ago, her parents...
