Funding
Here you can see from which sources the financing of our association is composed. The two most important pillars are GKV-Gemeinschaftsförderung and donations. In addition, we receive membership fees and project-related funding from time to time.
Donations for research funding since 2014
We use 100% of donations for Research funding. Thanks to the great commitment of individual NBIA families (see also Fundraising), our volume of donations has risen sharply in recent years, which, in view of the increasing number of NBIA variants is also urgently needed. The donations are mostly earmarked for the targeted promotion of research into an NBIA variant.
- 2021: 42.681 €
- 2020: 74.391 €
- 2019: 150.899 €
- 2018: 30.099 €
- 2017: 12.715 €
- 2016: 11.233 €
- 2015: 6.545 €
- 2014: 6.635 €
We would like to take this opportunity to express our sincere thanks to all donors and the NBIA families who collected donations!
GKV-Gemeinschaftsförderung for costs of association work since 2015
The basis for financing our self-help organization is formed by the lump-sum subsidies from the members of the "GKV-Gemeinschaftsförderung Self-help at the federal level". With these annual grants we cover a large part of the costs for our daily association work, which would otherwise not be possible. In the last years received Hoffnungsbaum e.V. the following sums:
- 2021: 16.000 €
- 2020: 16.000 €
- 2019: 15.000 €
- 2018: 13.000 €
- 2017: 12.000 €
- 2016: 11.000 €
- 2015: 8.000 €
We would like to take this opportunity to thank the members of the "GKV-Gemeinschaftsförderung Selbsthilfe auf Bundesebene":
All revenues and expenses
Here you can view our financial reports from previous years:
Prior to 2016, we published financial reports as part of our newsletter:
Financial report 2015 in the Newsletter No. 16
Financial report 2014 in the Newsletter No. 13
Financial report 2013 in the Newsletter No. 12
Financial report 2012 in the Newsletter No. 11
Financial Report 2011 in Newsletter No. 10
Self-disclosure
As a member of ACHSE e.V., the Hoffnungsbaum e.V. the "Guiding principles of self-help for cooperation with persons under private and public law, organizations and commercial enterprises, especially in the health care sector" recognized by BAG SELBSTHILFE and FORUM im PARITÄTISCHEN. In this context, we publish an annual self-disclosure of income from cooperation with commercial enterprises:
Other promotions
These organizations supported our association's work with subsidies - as a lump sum, or also project-related.
DAK Health
We thank you for supporting the strategy meetings of the Hoffnungsbaum board.
Technician health insurance
We would like to thank you for the financial support of our 8th NBIA Family Conference in Germany.
Kindness for Kids
We would like to thank you for the financial support of our 8th NBIA Family Conference in Germany.
European Commission
The project work of Hoffnungsbaum e.V. within the framework of TIRCON (Work Area 7: Dissemination) was funded by the European Commission (FP7/2007-2013, HEALTH-F2-2011, grant agreement 277984, TIRCON).
Fundraising appeals with proceeds going to Hoffnungsbaum
Mostly, it is dedicated NBIA parents who start fundraising appeals or even collect donations non stop.
Radfahren für BPAN-Forschung – Million Dollar Bike Ride 2023
Auch in diesem Jahr sammelt der Million Dollar Bike Ride (MDBR) der University of Pennsylvania in Philadelphia Spenden für die Erforschung seltener Erkrankungen. Die 10. Ausgabe des Benefizradrennens wird am 10. Juni 2023...
Fundraising-Aktion des Lions-Club Mühlacker für Hoffnungsbaum e.V.
Mühlacker, Dezember 2022: Im Rahmen eines Club-Abends des Lions-Club Mühlacker hatte das Hoffnungsbaum e.V. Vorstandsmitglied Tiemo Durm die Möglichkeit einen Vortrag über den Verein sowie dessen Ziele und Hintergründe zu halten. Die Inhalte stießen beim Lions-Club...
Mulled wine stand in aid of Hoffnungsbaum and Team Bananenflanke
The Sandbox Friends, Melanie Schratzenstaller, Michael Bogner, Stephan Thalhammer, Stefan Huber, Ramona Klement and Lisa Kaltenecker, from Eberspoint (south of Landshut) organized a mulled wine stand again on the first weekend in December after a break of two years...
Cycling for BPAN - Million Dollar Bike Ride 2022 again a great success!
Video: NBIA DA It worked again - in 2022, the Million Dollar Bike Ride (MDBR, https://www.milliondollarbikeride.org/) at the University of Pennsylvania in Philadelphia once again far surpassed the US$20,000 mark: Nearly US$39,000 was raised....
German-British family takes up the fight with BPAN
Kelly Sayers and Oliver Feiler are parents of two children: Max (8 years old) and Emily (5 years old). The family lives near London, England. 1 ½ years ago, they received the devastating news that Emily had BPAN. BPAN...
Million Dollar Bike Ride successful again with support from Hoffnungsbaum
Once again this year, the charity bike race at the University of Pennsylvania in Philadelphia in the USA, the Million Dollar Bike Ride 2021 was held virtually. It serves to raise funds for rare disease research, which this year was supported by 52...
Cycling for Laurin as part of the Million Dollar Bike Ride
As part of the Million Dollar Bike Ride (MDBR), we started a fundraiser in our backyard at home in support of BPAN. Friends, relatives and acquaintances were invited to come by our house on their bikes and bring a donation. In return, there were fresh...
Cycling for BPAN - Million Dollar Bike Ride 2021
It's that time again: The Million Dollar Bike Ride (MDBR) of the University of Pennsylvania in Philadelphia will take place for the 8th time until June 12, 2021. Due to the pandemic, this charity bike race will once again take place not only in the USA, but virtually all over the...
PKAN family launches fundraising campaign - newspapers report
Shortly after their 11-year-old daughter Vivienne was diagnosed with PKAN last year, the Helmold family set out and began fundraising for the PKAN Fund at Hoffnungsbaum to benefit research into one of the most common forms of NBIA, because nothing...
PKAN family launches another fundraising campaign
As at the beginning of the year, the Bianchi family is now once again actively collecting donations during Advent for the benefit of PKAN research, as their 3-year-old son Giulio suffers from this form of NBIA. In their hometown Kronau, parents Melanie and Tony have set up a booth with...
