Cycling for BPAN research - Million Dollar Bike Ride 2023

Once again this year, the Million Dollar Bike Ride (MDBR) at the University of Pennsylvania in...

International NBIA Symposium took place in Switzerland in October 2022

In 2020, the last NBIA scientists' meeting was only held online due to the pandemic. In October 2022...

Two MPAN project grants totaling $140,000 awarded

Hoffnungsbaum e.V. together with three sister organizations in Europe and the USA, has established two...

Mulled wine stand for the benefit of Hoffnungsbaum and Team Bananenflanke

The Sandbox Friends, Melanie Schratzenstaller, Michael Bogner, Stephan Thalhammer, Stefan Huber,...

8th International Symposium on NBIA in Switzerland

NBIA scientists meet to share their research from October 13-15 in...

Research project leads to a stem cell model of FAHN

A German team of scientists who received an award from the NBIA Disorders Association in...

Pilot Grant in the amount of $69,775 announced for BPAN research

As part of the Million Dollar Bike Ride 2022 (more information on this fundraising campaign), $69,775...

NBIA Family Conference 2022 postponed!

Hoffnungsbaum e.V. wanted to hold the 9.... in the Heilbronn youth hostel in September 2022.

July 6, 2022, online lecture: Myofasciotomy - a minimally invasive treatment for shortened muscles

NBIA disorders are often associated with restricted movement, changing muscle tension and...

Hoffnungsbaum e.V.

Here we give you an insight into the current work of the association. Hoffnungsbaum e.V..

8th International Symposium on NBIA in Switzerland

8th International Symposium on NBIA in Switzerland

NBIA scientists will meet to share their research from October 13-15 in Lausanne, Switzerland, at the 8th International NBIA Symposium. More than 20 scientists and physicians from all over the world will present the results of their NBIA projects in...

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NBIA Family Conference 2022 postponed!

Hoffnungsbaum e.V. wanted to organize the 9th NBIA Family Conference in Germany in September 2022 at the youth hostel in Heilbronn. We were very much looking forward to finally having a face-to-face meeting of NBIA families again after two years of the pandemic.

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Generational change in the Management Board of Hoffnungsbaum

Generational change in the Management Board of Hoffnungsbaum

On 21.11.2021, the annual general meeting of Hoffnungsbaum e.V. (HoBa) – with groundbreaking decisions for the future of our NBIA patient organization through the completion of the generational change in the association's management and the reorganization...

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Hoffnungsbaum Info Letter 2020

Hoffnungsbaum Info Letter 2020

Also in 2020 we have put together an information letter for you. It contains information about the association's activities in 2020 and an outlook for next year. If you want to be kept up to date, subscribe to our online newsletter.

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Results of the Hoffnungsbaum survey 2020

In the period August – September 2020, Hoffnungsbaum e.V. conducts a wide-ranging opinion poll among all members of the association as well as NBIA families in Germany, Austria and Switzerland with whom we are in contact. The aim of the survey was to explore...

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