q Association work | Hoffnungsbaum e.V.

Update on the CoA-Z clinical trial

Over the past few months, the OHSU CoA-Z study team has shared the initial study results with all...

NBIA International Scientific Conference in Poland

On October 19 and 20, 2023, a BPAN workshop, an NBIA Alliance meeting, was held in Warsaw, Poland....

Videos of the NBIA Family Conference 2023 in the USA online

For the first time since the pandemic, the NBIA Disorders Association held the 12th International...

Insights into BPAN research at the family conference in the USA

BPAN families attending the NBIA Disorders Association (NBIADA) Family Conference in May in...

MDBR sets donation record and makes 2 scholarships possible

This year, the "NBIA Disorders" team and NBIA families have been involved in the Million Dollar Bike...

BPAN researcher develops stem cell model and awaits funding for planned drug screening

Dr. Paul Lockhart of the Murdoch Children's Research Institute in Melbourne, Australia, says that...

Hoffnungsbaum e.V.

Here we give you an insight into the current association work of Hoffnungsbaum e.V..

8th International Symposium on NBIA in Switzerland

8th International Symposium on NBIA in Switzerland

NBIA scientists will meet to share their research from October 13-15 in Lausanne, Switzerland, at the 8th International NBIA Symposium. More than 20 scientists and physicians from all over the world will present the results of their NBIA projects in...

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NBIA Family Conference 2022 postponed!

Hoffnungsbaum e.V. wanted to host the 9th NBIA Family Conference in Germany in September 2022 at the Heilbronn Youth Hostel. We were very much looking forward to finally being able to get an in-person meeting of NBIA families again after two years of pandemic.

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Generational change in the Management Board of Hoffnungsbaum

Generational change in the Management Board of Hoffnungsbaum

On 21.11.2021, the annual general meeting of Hoffnungsbaum e.V. (HoBa) took place - with groundbreaking decisions for the future of our NBIA patient organization through the completion of the generational change in the association's management and the reorganization...

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Hoffnungsbaum Newsletter 2020

Hoffnungsbaum Newsletter 2020

We have once again put together a newsletter for you in 2020. It contains information on the association's activities in 2020 and an outlook for next year. If you would like to be kept up to date, please subscribe to our online newsletter.

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Results of the Hoffnungsbaum survey 2020

In the period August - September 2020 Hoffnungsbaum e.V. conducted a broad-based opinion survey among all association members and NBIA families in Germany, Austria and Switzerland with whom we are in contact. The aim of the survey was to explore...

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