Radfahren für BPAN-Forschung – Million Dollar Bike Ride 2023

Auch in diesem Jahr sammelt der Million Dollar Bike Ride (MDBR) der University of Pennsylvania in...

International NBIA Symposium held in Switzerland in October 2022

2020 fand das letzte NBIA-Wissenschaftlertreffen pandemiebedingt nur online statt. Im Oktober 2022...

Two MPAN project grants totaling $140,000 awarded.

Hoffnungsbaum e.V. has, in conjunction with three sister organizations in Europe and the USA, developed two...

Mulled wine stand in aid of Hoffnungsbaum and Team Bananenflanke

The Sandbox Friends, Melanie Schratzenstaller, Michael Bogner, Stephan Thalhammer, Stefan Huber,...

8th International Symposium on NBIA in Switzerland

NBIA scientists will meet to share their research Oct. 13-15 in...

Research project leads to a stem cell model of FAHN

A team of German scientists who received a 2020 grant from the NBIA Disorders Association...

Pilot Grant of $69,775 announced for BPAN research.

The Million Dollar Bike Ride 2022 (Learn more about this fundraiser) raised $69,775 in...

NBIA Family Conference 2022 postponed!

Hoffnungsbaum e.V. wanted in September 2022 in the youth hostel of Heilbronn the 9....

July 6, 2022, Online Lecture: Myofasciotomy - a minimally invasive treatment for shortened muscles.

NBIA disorders are often associated with limited range of motion, changing muscle tension and...

Hoffnungsbaum e.V.

Here we give you an insight into the current association work of Hoffnungsbaum e.V..

8th International Symposium on NBIA in Switzerland

8th International Symposium on NBIA in Switzerland

NBIA scientists will meet to share their research Oct. 13-15 in Lausanne, Switzerland, as part of the 8th International NBIA Symposium. More than 20 scientists and physicians from around the world will present the results of their NBIA projects,...

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NBIA Family Conference 2022 postponed!

Hoffnungsbaum e.V. wanted to organize the 9th NBIA Family Conference in Germany in September 2022 in the youth hostel of Heilbronn. We were very much looking forward to finally having a face-to-face meeting of NBIA families again after two years of the pandemic....

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Generation change in the Management Board of Hoffnungsbaum

Generation change in the Management Board of Hoffnungsbaum

On Nov. 21, 2021, the annual membership meeting of. Hoffnungsbaum e.V. (HoBa) took place - with groundbreaking decisions for the future of our NBIA patient organization through the completion of the generational change in the association's leadership and the reorganization...

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Cycling for Laurin as part of the Million Dollar Bike Ride

Cycling for Laurin as part of the Million Dollar Bike Ride

As part of the Million Dollar Bike Ride (MDBR), we started a fundraiser in our backyard at home in support of BPAN. Friends, relatives and acquaintances were invited to come by our house on their bikes and bring a donation. In return, there were fresh...

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Hoffnungsbaum Info letter 2020

Hoffnungsbaum Info letter 2020

In 2020, we have again compiled an information letter for you. It contains information on the association's activities in 2020 and an outlook for next year. If you always want to be kept up to date, then subscribe to our online newsletter.

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Results of the Hoffnungsbaum-survey 2020

In the period August - September 2020 Hoffnungsbaum e.V. conducted a broadband opinion survey among all association members as well as NBIA families in Germany, Austria and Switzerland with whom we are in contact. The aim of the survey was to explore...

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