Help for affected

We offer help and support to those affected and their families in a variety of ways.

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Newly diagnosed

Get help if you've just received an NBIA diagnosis.

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Personal advice

Here you will find our direct contact persons who will be happy to advise you.

Family network

Here you can find the Hoffnungsbaumfamily network.

Family conferences

Here you will find reports about our family conferences.

Online Lectures

We invite experts to give online presentations on various topics.

Findings and consultation folders

For all those affected by NBIA, we offer this practical help for everyday life free of charge.

Social law

Here you will find information on the help to which NBIA sufferers are entitled.

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With our newsletter e-mails you will receive valuable information about NBIA. If you would like to receive additional information on individual NBIA variants or special information for researchers/clinicians in addition to the general newsletter, please click here: Subscribe to additional information

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