Help for affected

We offer help and support to those affected and their families in a variety of ways.

Newly diagnosed

Here you will find assistance if you have just received an NBIA diagnosis.

Personal advice

Here you will find our direct contacts who will be happy to advise you.

Family network

Here you can participate in the Hoffnungsbaum-family network.

Family conferences

Here you can find reports about our family conferences.

Online lectures

Within the framework of online lectures, we invite experts on various topics.

Findings and consultation folders

For all NBIA sufferers we offer this practical help for everyday life free of charge.

Social law

Here you can find info on assistance to which NBIA sufferers are entitled.

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With our newsletter emails you will receive valuable information about NBIA. If you would like to subscribe to additional info on individual NBIA variants or special info for researchers/clinicians besides the general newsletter, please click here: Subscribe additional info

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