MPAN - Mitochondrial Membrane Protein Associated Neurodegeneration.
An updated disease description is currently in progress. Please be patient a little longer.
The most up-to-date patient-focused information on NBIA and its various forms can be found here:
- Patient-oriented disease description from the ACHSE network (German)
- NBIA Disorders Association website (English)
- GeneReviews® review article on NBIA (with linked articles on the main 10 NBIA forms, English).
News about MPAN
Here you can find current information about the NBIA variant MPAN.
Two MPAN project grants totaling $140,000 awarded.
Hoffnungsbaum e.V. In partnership with three sister organizations in Europe and the United States, has awarded two MPAN grants to advance research priorities in mitochondrial membrane protein-associated neurodegeneration (MPAN) ...
Current call for an MPAN grant reflects clearly defined priorities
Hoffnungsbaum e.V. is partnering with three sister organizations on a current call for grants of up to $145,000 for one two-year or two one-year MPAN research projects:...
Call for proposals on MPAN research open by May 2, 2022
Associazione Italiana Sindromi Neurodegenerative da Accumulo di Ferro (AISNAF, Italy), Hoffnungsbaum e.V. (HoBa, Germany), NBIA Disorders Association (NBIADA, USA), and Stichting Ijzersterk (The Netherlands) are soliciting the submission of research projects by...
NBIA Disorders Association family conference sessions now available online
The virtual conference platform is now open to all, tuition-free, so interested English-speaking families can view those sessions that are available as recordings. The program includes patient-focused research updates...
Record number of participants at the 7th International Scientific NBIA Symposium
Authors of the original English article: Patricia Wood and Angelika Klucken 160 participants from 26 countries attended the 7th International Symposium on NBIA and Related Disorders, held for the first time as a virtual event. Because online access made it...
Hoffnungsbaum e.V. finances MPAN project at Helmholtz Zentrum München
Hoffnungsbaum e.V. awards funding of € 151,540 to Dr. Arcangela Iuso and her team from the Institute of Neurogenomics at the Helmholtz Center in Munich. The grant will fund a 27-month research project to uncover essential...
NBIA Symposium 2020 takes place online
The 7th International Symposium on NBIA and Related Disorders will now be held virtually September 30 - October 3, 2020. Save the date for our virtual symposium! - Updates on new findings in NBIA diseases....
7th International NBIA Symposium in Lausanne postponed!
Postponed to Fall 2021 due to Corona situationUnfortunately, the 7th NBIA International Symposium will not take place in Lausanne, Switzerland, from October 1-3, 2020, and will be postponed to Fall 2021. For three days, scientists and physicians from...
Hoffnungsbaum Information letter at the end of 2019
Hoffnungsbaum e.V. sent this winter for the last time a newsletter as a print edition, which is available here as a download: Hoffnungsbaum-Infobrief-Winter-2019 In the future, we will mainly be communicating via our New Website or via our...
Benefit "Strong together for Maya" for MPAN research
In Lauterbach, a large charity event was held on June 1, 2019. The fate of 12-year-old Maya, who has the NBIA variant MPAN, moves the whole village, many other people in the Saarland and beyond. They all want to support Maya and...
