MPAN – Mitochondrial Membrane Protein-Associated Neurodegeneration
An updated description of the disease is currently being prepared. Please be patient.
The latest patient-oriented information on NBIA and the individual forms can be found here:
- Patient-oriented disease description from the ACHSE network (German)
- Website of the NBIA Disorders Association (English)
- GeneReviews® review article on NBIA (with linked articles on the 10 most important NBIA forms, English)
News about MPAN
Here you can find the latest information about the NBIA variant MPAN.
Globale Zusammenarbeit führt zu Fortschritten in der MPAN-Forschung
Im November 2022 vergab Hoffnungsbaum e.V. zusammen mit den Schwesterorganisationen NBIA Disorders Association (NBIA DA) in den USA, Associazione Italiana Sindromi Neurodegenerative da Accumulo di Ferro (AISNAF) in Italien und Stichting Ijzersterk in den Niederlanden...
Two MPAN project grants totaling $140,000 awarded
Hoffnungsbaum e.V. in conjunction with three sister organizations in Europe and the US, has awarded two MPAN grants to advance research priorities in the field of mitochondrial membrane protein-associated neurodegeneration (MPAN)...
Current call for MPAN funding reflects clearly defined priorities
Hoffnungsbaum e.V. is partnering with three sister organizations on a recent call for funding of up to USD 145,000 for one two-year or two one-year MPAN research projects:...
Call for proposals on MPAN research open by May 2, 2022
Associazione Italiana Sindromi Neurodegenerative da Accumulo di Ferro (AISNAF, Italy), Hoffnungsbaum e.V. (HoBa, Germany), NBIA Disorders Association (NBIADA, USA), and Stichting Ijzersterk (The Netherlands) are soliciting the submission of research projects by...
NBIA Disorders Association family conference sessions now available online
The virtual conference platform is now open to all, free of charge, so that interested families with English language skills can watch those sessions that are available as recordings. The program includes patient-focused research updates...
Record number of participants at the 7th International Scientific NBIA Symposium
Authors of the original article: Patricia Wood and Angelika Klucken 160 participants from 26 countries attended the 7. International Symposium on NBIA and Related Diseases, which was held as a virtual event for the first time. Since online access makes it easy to...
Hoffnungsbaum e.V. finances MPAN project at Helmholtz Zentrum München
Hoffnungsbaum e.V. awards funding of € 151,540 to Dr. Arcangela Iuso and her team from the Institute of Neurogenomics at the Helmholtz Centre in Munich. The funding will be used to finance a 27-month research project aimed at uncovering significant...
NBIA Symposium 2020 takes place online
The 7. International Symposium on NBIA and Related Diseases will now be held virtually from September 30 to October 3, 2020. Save the date for our virtual symposium! • Update on new findings in NBIA diseases...
7th International NBIA Symposium in Lausanne postponed!
Postponed to autumn 2021 due to the Corona situationThe 7th International NBIA Symposium will unfortunately not take place from 1 – 3 October 2020 in Lausanne, Switzerland and will be postponed to autumn 2021. For three days, scientists and physicians from...
Hoffnungsbaum Information letter at the end of 2019
Hoffnungsbaum e.V. sent out a newsletter as a print edition for the last time this winter, which is available for download here: Hoffnungsbaum-Infoletter-Winter-2019 In the future, we will mainly be able to use our new website or our website.
