Board of Directors
On November 10, 2022, new elections were held as scheduled. Five volunteer board members and one full-time employee are entrusted with the association's tasks.
The acting board of directors
Markus Nielbock, 1st Chairman, Board member since 2018, father of a daughter with BPAN
Noah Rusch, 2nd Chairman, Board Member since 2018, father of a son with BPAN
Sigune Lüchtefeld, treasurer, board member since 2021, mother of a daughter with BPAN
Tiemo Durm, assessor, board member since 2020, father of a daughter with PKAN
Ufuk Calisici, assessor, board member since 2021, friend of an affected family
Still active as an advisory expert (non-voting) at board meetings:
Angelika Klucken, 1. chairwoman from 2002 to 2021, mother of a son with PKAN
Stephan Klucken, treasurer/secretary from 2002 to 2021, father of a son with PKAN
Changes in recent years
Board elections 2018:
As part of our 8th NBIA Family Conference in September 2018 in Düsseldorf, Germany, on 9/22/18 we also held the annual general meeting of Hoffnungsbaum e.V. took place. According to rotation, a new board was elected. We said goodbye to our board members Maayke Arends, Ursula Hofmann and Michaela Schürer, who did not run again, and thank them very much for their many years of cooperation and support. Newly elected to the board in 2018 were Anja Barthe, Markus Nielbock and Noah Rusch. Michel Baumann, Angelika and Stephan Klucken and Karola Peka were re-elected.
Changes 2020:
Two long-time board members, Michel Baumann (since 2010) and Karola Peka (since 2006) have left the association board of Hoffnungsbaum e.V. this year, in order to initiate the generation change in the board, which has been planned for some time, by their resignation. Sebastian Matthiesen and Tiemo Durm were then newly elected to the board by the general meeting, which took place on October 25, 2020 as a hybrid meeting in Düsseldorf on site and additionally virtually. Thus, two members of the association who have been very committed for a long time move up into the board, and for the first time, the NBIA variant MPAN is also represented in the association's management by Sebastian Matthiesen. We would like to thank the resigning board members for their active support over the years and look forward to working with the new board members.
Changes 2021:
The two founding members Angelika Klucken and Stephan Klucken have resigned from their board positions (1st chairperson and treasurer, respectively) as planned. In the general meeting on 21.11.2021 these offices were newly filled. Markus Nielbock was elected as 1st chairman, Sebastian Matthiesen as 2nd chairman and Sigune Lüchtefeld as treasurer. In addition, Ufuk Calisici was newly elected to the board as an assessor. Anja Barthe, Noah Rusch and Tiemo Durm are still active in the board as assessors with voting rights. Karola Peka was elected as new cash auditor.
New elections 2022:
Anja Barthe and Sebastian Matthiesen did not run again. We thank them very much for their longtime support! Unfortunately, we could not find any replacement candidates for them. In the new election, the five remaining board members were confirmed in their positions, with Noah Rusch being elected as 2nd chairperson. New auditors were Stephan Klucken and Klaus Luechtefeld.
