Hoffnungsbaum e.V.

Association for the promotion of research and treatment of NBIA diseases

We want to make NBIA diseases curable.

NBIA diseases are like Parkinson's and dementia in childhood.

Giving hope - promoting research!

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Hope - Help - Healing...

We support those affected and their families.

Hoffnungsbaum e.V. - We want to make NBIA diseases curable.

In simple terms, NBIA diseases can be thought of as a mixture of Parkinson's disease and childhood dementia. In affected children, this manifests itself in progressive movement and developmental disorders. They gradually lose their motor skills and suffer severe, painful muscle spasms (dystonia). Depending on the NBIA disease, dementia, severe epilepsy and various other symptoms may also occur. More info

NBIA diseases usually begin in childhood and adolescence, have hardly been researched and are still incurable. Those affected often die young. Hoffnungsbaum e. V. is committed to international research funding in order to give NBIA sufferers and their families hope for better treatment and a cure that has not yet been found. We need your support - donate now!

The association Hoffnungsbaum e.V.

Here you will find all the important information about the association and membership.

What is NBIA?

Here you will find information on the individual NBIA diseases.

Help for affected

Here, those affected or their relatives will find important information and assistance.

Cycling for BPAN research - Million Dollar Bike Ride 2023

Once again this year, the Million Dollar Bike Ride (MDBR) at the University of Pennsylvania in...

International NBIA Symposium took place in Switzerland in October 2022

In 2020, the last NBIA scientists' meeting was only held online due to the pandemic. In October 2022...

Two MPAN project grants totaling $140,000 awarded

Hoffnungsbaum e.V. together with three sister organizations in Europe and the USA, has established two...

Mulled wine stand for the benefit of Hoffnungsbaum and Team Bananenflanke

The Sandbox Friends, Melanie Schratzenstaller, Michael Bogner, Stephan Thalhammer, Stefan Huber,...

8th International Symposium on NBIA in Switzerland

NBIA scientists meet to share their research from October 13-15 in...

Research project leads to a stem cell model of FAHN

A German team of scientists who received an award from the NBIA Disorders Association in...

Pilot Grant in the amount of $69,775 announced for BPAN research

As part of the Million Dollar Bike Ride 2022 (more information on this fundraising campaign), $69,775...

NBIA Family Conference 2022 postponed!

Hoffnungsbaum e.V. wanted to hold the 9.... in the Heilbronn youth hostel in September 2022.

July 6, 2022, online lecture: Myofasciotomy - a minimally invasive treatment for shortened muscles

NBIA disorders are often associated with restricted movement, changing muscle tension and...


Here you will find information about international and national research projects.


Here you will find our partner organisations, umbrella organisations and our worldwide network.


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