Online lectures
Here you will find an overview of online lectures organized by Hoffnungsbaum . If the lecture is still in the future, you can register online.
December 7, 2022, online lecture: The Gailinger concept for dealing with swallowing disorders
I got to know the "Gailinger concept for dealing with swallowing disorders (not only) in children" during my son's rehabilitation stay at the Hegau-Jugendwerk. Our son benefited greatly from it and so I'm delighted that we were able to introduce Christina Rauber (MSc and speech therapist)...
October 12, 2022, online lecture: Understanding hereditary developmental disorders better - what you can learn from the natural course of the disease
Steffen Syrbe is a pediatric neurologist and Professor of Pediatric Epileptology at Heidelberg University Hospital. He has been working with children with neurodevelopmental disorders for over 15 years. During this time, he has developed a strong interest in genetic causes...
July 6, 2022, online lecture: Myofasciotomy - a minimally invasive treatment for shortened muscles
NBIA disorders are often accompanied by restricted movement, alternating muscle tension and involuntary cramps (dystonia), which cause the muscles to become increasingly shortened. Under certain conditions, myofasciotomy can provide some relief.
First online lecture: 28 participants at lecture on BPAN research in Tübingen
On February 10, 2021 Hoffnungsbaum e.V. launched a new online service for our families, especially in German-speaking countries. A loose sequence of video meetings on various topics relevant to NBIA sufferers will take place....
