News from Maya and the MPAN fundraiser

from | January 28, 2019

In December we had the Fundraiser from Matthiesen family for the benefit of MPAN research. Maya herself actively supports this crowdfunding, which was launched by her parents shortly after her diagnosis.

Together with her big brother, she produced this touching video. In it, she thanks - also on behalf of and with numerous pictures of many other MPAN sufferers all over the world - the people who have donated. These donations will help uncover the exact disease mechanisms that lead to the condition and find therapies for MPAN that can halt the progression of the disease. Like all NBIA diseases, MPAN is currently incurable.

More than 10.000 Euro have been received since the end of November until now on the donation account of Hoffnungsbaum in favor of MPAN-Forschung e.V. to get closer to this goal. The beginning is made...

Many thanks also from us at Hoffnungsbaum headquarters to all donors!

Subscribe to our Hoffnungsbaum newsletter!

With our newsletter emails you will receive valuable information about NBIA. If you would like to subscribe to additional info on individual NBIA variants or special info for researchers/clinicians besides the general newsletter, please click here: Subscribe additional info

Privacy policy

You have successfully registered!