Online lectures
Here you will find an overview of online lectures organized by Hoffnungsbaum. If the lecture is in the future, you can register online.
Videos of the NBIA Family Conference 2023 in the USA online
For the first time since the pandemic, the NBIA Disorders Association hosted the 12th NBIA International Family Conference in the United States. For 4 days from May 18 to 21, 2023, a total of 70 NBIA families and 41 speakers, including some NBIA experts, came to Houston, Texas...
December 7, 2022, online lecture: The Gailinger concept for dealing with swallowing disorders
I got to know the "Gailingen concept for dealing with swallowing disorders (not only) in children" during a rehabilitation stay of my son in the Hegau-Jugendwerk. Our son benefited greatly from it and so I am pleased that we can welcome Christina Rauber (MSc and speech therapist)...
October 12, 2022, online lecture: Understanding hereditary developmental disorders better - what you can learn from the natural course of the disease
Steffen Syrbe is a pediatric neurologist and professor of pediatric epileptology at Heidelberg University Hospital. He has been working with children with neurological development disorders for over 15 years. During this time, he has developed a strong interest in genetic causes...
July 6, 2022, online lecture: Myofasciotomy - a minimally invasive treatment for shortened muscles
NBIA disorders are often associated with movement restrictions, fluctuating muscle tension, and involuntary cramps (dystonia), which increasingly shorten the muscles. Under certain conditions, myofasciotomy can provide some relief here...
First online lecture: 28 participants at lecture on BPAN research in Tübingen
On February 10, 2021, Hoffnungsbaum e.V. launched a new online service for our families, especially in German-speaking countries. It is intended to be a loose series of video meetings on various topics relevant to those affected by NBIA....
