Call for proposals for the funding of NBIA research projects

from | April 9, 2019

The NBIA patient organizations AISNAF (Italy), Hoffnungsbaum e.V.(Germany) and NBIA Disorders Association (USA) announce a joint funding initiative to award research grants for the study of the following two NBIA variants:

  1. Beta-propeller protein associated neurodegeneration (BPAN - gene WDR45):
    Funding of up to €65,000 is available for an 18-month research project on BPAN.
  2. Mitochondrial membrane protein-associated neurodegeneration (MPAN gene c19orf12):
    Funding of up to € 90,000 is available for a 2-year research project on MPAN.  

Deadline for the submission of proposals: May 13, 2019

As manager of this international joint initiative, the Italian patient organization AISNAF is currently accepting applications with project proposals. The research projects are intended to pave the way for new treatment options for the aforementioned NBIA diseases.

Further information and the funding application can be found here:

The participation of Hoffnungsbaum e.V. in this funding initiative was made possible by the "Milly's Mission" fundraising campaigns of the Nielbock family ( and "Help Maya" from the Matthiesen family.
On behalf of all those affected by BPAN and MPAN, we would like to thank the two families and all donors for their commitment, which Hoffnungsbaum e.V. which has enabled us to provide a total of €46,000 for BPAN and MPAN research projects.

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