Personal advice
We are here to help – do not hesitate to contact us!
They can be our Contact form to use, contact us at info@hoffnungsbaum.de write a direct e-mail or contact us at +49 (0)2405 69 99 781 by telephone. If you have specific questions, we will be happy to put you in touch with relatives or parents of those affected who are very familiar with the individual NBIA disorders because they have been dealing with them for years. We also have members who specialize professionally in crisis management. Your contacts are
Noah Rusch
2nd Chairman, main contact person
Father of a son with BPAN
Main areas of consultation:
Initial contacts, BPAN, swallowing disorders
Angelika Klucken
former chairwoman,
Mother of a son with PKAN
Main areas of consultation:
NBIA research, PKAN, MPAN
Beate Sonnenschein
Employee
Main areas of consultation:
Family network, information material, findings and consultation folder
Ufuk Calisici
Board member,
Friend of an affected family
Main areas of consultation:
Crisis management, mental support
Markus Nielbock
1st Chairman,
Father of a daughter with BPAN
Main areas of consultation:
NBIA research, BPAN
