NBIA Findings and Consultation Folder
A practical aid for everyday life – collect all findings and current information about your NBIA disorder.
The “NBIA Findings and Consultation Folder” developed by Hoffnungsbaum is designed to be a practical aid in everyday life and to support you on your journey with NBIA. Our findings and consultation folder is divided into two parts:
- The first part is for documentation. Here you can file and enter medical findings and treatment documents of your child or relative, as well as your observations on the course of the disease and treatment. The included organizational system, which you can customize and supplement, provides you with orientation.
- The second part of the folder is a guide and contains information material on the disease and treatment options, doctors and clinics, our self-help work, etc. This allows you to bundle important documents and information in a single folder and have them quickly at hand – for your own overview and for that of your treating doctors, therapists, responsible health insurance companies, teachers, etc.
If you are interested in a copy of our findings and consultation folder or would like further information please contact us. The findings and consultation folder is a free service for all NBIA families. However, we would be very pleased about a donation. We also want to revise and improve the folder continuously according to your ideas and experiences. Please let us know your suggestions for changes and wishes.
Photos: Noah Rusch
