PKAN family launches fundraising campaign - newspapers report

Shortly after their 11-year-old daughter Vivienne was diagnosed with PKAN last year, the Helmold family set out and began collecting donations for the PKAN Fund at Hoffnungsbaum to benefit research into one of the most common forms of NBIA, because there is nothing children, teens and mostly young adults struggling with PKAN need more than effective therapies.

Vivienne with her parents,
Photo: Helmold family

Several times since then the regional press in Lower Saxony reported on the family, so at the turn of the year the Peiner Allgemeine Zeitung in an online article.
And in March reported the Braunschweiger Zeitung in the Pein local section in a touching way about Vivienne, her family and her commitment to using Hoffnungsbaum e.V. to promote research. Both articles are available online.

Hoffnungsbaum would like to express its sincere thanks to the Helmold family, whose campaign has generated 3,225.61 euros for the PKAN Research Fund since December to date. Our thanks also go to all other PKAN families and all donors who have supported this and other PKAN fundraising campaigns so far. Hoffnungsbaum e.V. Has begun to prepare an appropriation of funds for a PKAN research project.

PKAN has been reliably diagnosable since 2001 and has been the subject of intensive research ever since, with much progress, especially with regard to insights into the underlying pathomechanisms, but also with some setbacks and unexpected turns. This is no different in neurodegenerative disease research than in cancer research. But PKAN research is no longer at the cutting edge of knowledge; instead, scientists are increasingly moving toward therapies that will hopefully improve, halt, or even cure this disease in the near future.

If you would also like to donate for PKAN research, you are welcome to do so with the note: "PKAN" or "Vivienne" to the donation account of Hoffnungsbaum e.V..

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