PKAN family launches fundraising campaign - Newspapers report

from | May 6, 2021

Shortly after their 11-year-old daughter Vivienne was diagnosed with PKAN last year, the Helmold family set out to collect donations for the PKAN Fund at Hoffnungsbaum to support research into one of the most common forms of NBIA, because children, teenagers and mostly young adults struggling with PKAN need nothing more than effective therapies.

Vivienne with her parents,
Photo: Family Helmold

Since then, the regional press in Lower Saxony has reported on the family several times, including the Peiner Allgemeine Zeitung in an online article.
And in March, the Braunschweiger Zeitung in the Pein local section in a touching way about Vivienne, her family and her commitment to promoting research with the help of Hoffnungsbaum e.V. to promote research. Both articles are available online.

Hoffnungsbaum would like to thank the Helmold family, whose campaign has raised 3,225.61 euros for the PKAN Research Fund since December. We would also like to thank all other PKAN families and all donors who have supported this and other PKAN fundraising campaigns to date. Hoffnungsbaum e.V. has started to prepare the use of funds for a PKAN research project.

PKAN has been reliably diagnosable since 2001 and has been the subject of intensive research ever since, with many advances, particularly with regard to insights into the underlying pathomechanisms, but also with some setbacks and unexpected twists and turns. This is no different in research on neurodegenerative diseases than in cancer research. However, PKAN research is no longer in the early stages of discovery, but scientists are increasingly on the path to therapies that will hopefully be able to improve, stop or even cure this disease in the near future.

If you would also like to donate to PKAN research, you are welcome to do so with the note: "PKAN" or "Vivienne" to the donation account of Hoffnungsbaum e.V..

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