Cycling for BPAN – Million Dollar Bike Ride 2021

from | May 6, 2021

It's that time of year again: the 8th edition of the Million Dollar Bike Ride (MDBR) at the University of Pennsylvania in Philadelphia. Due to the pandemic, this charity bike race will once again not only take place in the USA, but virtually all over the world! This gives us in Germany the chance to be part of it again. Be it just by collecting donations or by actually cycling along, having fun and at the same time drawing attention to NBIA and especially BPAN with photos.

This year, over 40 different organizations are taking part and the NBIA variant BPAN will once again be represented by our partner organization NBIA Disorders Association (NBIA DA) in the USA.

The interesting thing about the MDBR is that the donations collected are doubled by the University of Pennsylvania for amounts between US$ 20,000 and US$ 30,000. Last year, a research grant for BPAN in the amount of US$ 71,471 was awarded to the University of Groningen (Netherlands). A team of researchers there will investigate the causes of disorders of certain processes in cells affected by BPAN, thus contributing to a better understanding of how BPAN develops:

Our goal is to exceed the US$ 20,000 mark again in 2021 together with the NBIA DA in order to initiate another new research project!

Impressions of the previous Million Dollar Bike Rides and the donations made:

Video: NBIA DA,

Markus Nielbock, second chairman of Hoffnungsbaum e.V.has once again registered "Team BPAN Germany", which will start with Hoffnungsbaum . You are all invited to become part of this team with friends, relatives, acquaintances, celebrities, athletes, colleagues, sponsors, ... without having to register separately, and to cycle and collect donations for BPAN research. Encourage people around you to take part. Start campaigns in your area and draw attention to BPAN. Publish photos and videos on social media to draw attention to the campaign using the hashtags: #pennmedmdbr2021 and #TeamBPANGermany or on Twitter and Instagram @MDBRide4Rare and on Facebook @milliondollarbikeride. Use our in photos and videos Team BPAN Germany Poster. You can also send us pictures for publication on this page or on our Team website.

Please send the donations directly to Hoffnungsbaum with the note "Team BPAN Germany". Hoffnungsbaum will then transfer them collectively to our partner organization NBIA Disorders Association (NBIA DA). We are very confident that with your support and together with the NBIA DA we will exceed the US $ 20,000 mark and once again double the amount raised.

The contact person for the "Team BPAN Germany" website is Markus Nielbock:

Please send donations directly to our donation account with the reference "Team BPAN Germany": DE67 3305 0000 0000 305979

Milly and Laurin were on the road for BPAN research!
Photos: Markus Nielbock, Noah Rusch

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