Board member Noah Rusch gives an interview on Rare Disease Day
Noah Rusch gives an insight into the challenges and family life with his son Laurin, who suffers from BPAN. The interview was published by the Ambulant Children's Hospice Foundation Munich on the occasion of Rare Disease Day 2022: https://www.kinderhospiz-muenchen.de/zum-tag-der-seltenen-erkrankungen-2022/
Photos: Noah Rusch