MPAN – Mitochondrial Membrane Protein-Associated Neurodegeneration
An updated description of the disease is currently being prepared. Please be patient.
The latest patient-oriented information on NBIA and the individual forms can be found here:
- Patient-oriented disease description from the ACHSE network (German)
- Website of the NBIA Disorders Association (English)
- GeneReviews® review article on NBIA (with linked articles on the 10 most important NBIA forms, English)
News on MPAN
Here you can find the latest information on the NBIA variant MPAN.
Global collaboration leads to progress in MPAN research
In November 2022, Hoffnungsbaum e.V. , together with its sister organizations NBIA Disorders Association (NBIA DA) in the USA, Associazione Italiana Sindromi Neurodegenerative da Accumulo di Ferro (AISNAF) in Italy and Stichting Ijzersterk in the Netherlands, awarded...
Two MPAN project grants totaling $140,000 awarded
Hoffnungsbaum e.V., in partnership with three sister organizations in Europe and the USA, has awarded two MPAN fellowships to advance research priorities in the field of Mitochondrial Membrane Protein-Associated Neurodegeneration (MPAN)...
Current call for MPAN funding reflects clearly defined priorities
Hoffnungsbaum e.V. is cooperating with three sister organizations on a current call for funding of up to USD 145,000 for a two-year or two one-year MPAN research projects:...
Call for proposals on MPAN research open by May 2, 2022
Associazione Italiana Sindromi Neurodegenerative da Accumulo di Ferro (AISNAF, Italy), Hoffnungsbaum e.V. (HoBa, Germany), NBIA Disorders Association (NBIADA, USA), and Stichting Ijzersterk (The Netherlands) are soliciting the submission of research projects by...
NBIA Disorders Association family conference sessions now available online
The virtual conference platform is now open to everyone free of charge, so interested families with knowledge of English can watch those sessions that are available as recordings. The program includes patient-centered research updates...
Record number of participants at the 7th International Scientific NBIA Symposium
Authors of the original English article: Patricia Wood and Angelika Klucken 160 participants from 26 countries attended the 7th International Symposium on NBIA and related disorders, which took place as a virtual event for the first time. Since the online access...
Hoffnungsbaum e.V. finances MPAN project at the Helmholtz Center Munich
Hoffnungsbaum e.V. is awarding funding of €151,540 to Dr. Arcangela Iuso and her team from the Institute of Neurogenomics at the Helmholtz Center in Munich. The funding will finance a 27-month research project to uncover essential...
NBIA Symposium 2020 takes place online
The 7th International Symposium for NBIA and related disorders will now take place virtually from September 30 to October 3, 2020. Save the date for our virtual symposium! • News on new findings in NBIA diseases...
7th International NBIA Symposium in Lausanne postponed!
Postponed to autumn 2021 due to the corona situation. The 7th International NBIA Symposium will unfortunately not take place from October 1 - 3, 2020 in Lausanne, Switzerland and will be postponed to autumn 2021. For three days, scientists and doctors from...
Hoffnungsbaum newsletter at the end of 2019
Hoffnungsbaum e.V. sent out a newsletter as a print edition for the last time this winter, which is available for download here: Hoffnungsbaum-Infobrief-Winter-2019 In the future, we will primarily communicate via our new website or via our...
