Board member Noah Rusch gives an interview on Rare Disease Day
In an interview, Noah Rusch gives insights into the challenges and family life with his son Laurin, who has BPAN. The interview was published by the Munich Outpatient Children's Hospice Foundation to mark Rare Disease Day 2022: https://www.kinderhospiz-muenchen.de/zum-tag-der-seltenen-erkrankungen-2022/
Photos: Noah Rusch
