In December, we had the Fundraising campaign by the Matthiesen family for the benefit of MPAN research. Maya herself actively supports this crowdfunding campaign, which was launched by her parents shortly after her diagnosis.

Together with her older brother, she produced this touching video. In it, she thanks the people who have donated at Christmas - also on behalf of and with numerous pictures of many other MPAN sufferers around the world. These donations are intended to help uncover the exact disease mechanisms that lead to the illness and to find therapies for MPAN that can halt the progression of the disease. Like all NBIA diseases, MPAN is currently incurable.

Since the end of November, more than 10,000 euros have been credited to the donation account of Hoffnungsbaum for the benefit of MPAN-Forschung e.V. in order to get closer to this goal. The start has been made...

Many thanks also from us at the Hoffnungsbaum head office to all donors!

On 29 November, the Saarländischer Rundfunk (SR) drew attention to the
situation of the family and their fundraising campaign in an empathetic way. Television report Attention.

Just the September before, the Matthiesen family had received the diagnosis of MPAN for their 12-year-old daughter Maya. They were dismayed to learn that the disease – like all forms of NBIA – is currently incurable and urgently needs further research. That's why she went public and, in cooperation with Hoffnungsbaum e.V. started to work with the help of a Crowdfundingwebsite to raise money for MPAN research. If you would like to donate to MPAN research, you can make your transfer to the well-known donation account of Hoffnungsbaum send. It is important that "MPAN" or "Maya" is indicated as the intended use.

MPAN (Mitochondrial Membrane Protein-Associated Neurodegeneration) is one of the four most common forms of the very rare group of NBIA diseases and, in addition to the characteristic iron deposits in the basal ganglia, inexorably leads to movement disorders and other symptoms that greatly impair life."