Funding
Here you can see the sources from which the financing of our association is composed. The two most important pillars are the GKV-Gemeinschaftsförderung and donations. In addition, we receive membership fees and project-related funding.
Donations for research funding since 2014
We use 100% of donations for Research funding. Thanks to the great commitment of individual NBIA families (see also Fundraising), our donations have risen sharply in recent years, which is significant in view of the increasing number of NBIA variants is also urgently needed. The donations are usually earmarked for the targeted promotion of research into an NBIA variant.
- 2022: €25,011
- 2021: €42,681
- 2020: €74,391
- 2019: 150.899 €
- 2018: €30,099
- 2017: 12.715 €
- 2016: 11.233 €
- 2015: 6.545 €
- 2014: 6.635 €
We would like to take this opportunity to thank all donors and the fundraising NBIA families!
GKV-Gemeinschaftsförderung for costs of the association's work since 2015
The basis for the financing of our self-help organization is the lump-sum grants from the members of the "GKV-Gemeinschaftsförderung Self-help at the federal level". With these annual grants, we cover a large part of the costs for our daily association work, which would otherwise not be possible. In recent years, Hoffnungsbaum e.V. the following sums:
- 2022: €18,000
- 2021: 16.000 €
- 2020: 16.000 €
- 2019: 15.000 €
- 2018: 13.000 €
- 2017: 12.000 €
- 2016: 11.000 €
- 2015: 8.000 €
We would like to take this opportunity to thank the members of the "GKV-Gemeinschaftsförderung Self-help at the federal level":
All income and expenses
Here you can view our financial reports for the past years:
Prior to 2016, we published the financial reports as part of our newsletter:
Financial Report 2015 Newsletter No. 16
Financial Report 2014 Newsletter No. 13
Financial Report 2013 Newsletter No. 12
Financial Report 2012 Newsletter No. 11
Financial Report 2011 in Newsletter No. 10
Self-disclosures
As a member of ACHSE e.V., Hoffnungsbaum e.V. The "Principles of self-help for cooperation with persons under private and public law, organisations and commercial enterprises, especially in the health sector" by BAG SELBSTHILFE and FORUM in the PARITY. In this context, we publish an annual self-disclosure on income from cooperation with commercial enterprises:
Further Funding
These organizations supported our association's work with grants – lump sum or project-related.
DAK Health
We would like to thank you for your support of the strategy meetings of the Hoffnungsbaum-Board.
Technician Health Insurance
We would like to thank you for the financial support of our 8th NBIA Family Conference in Germany.
Kindness for Kids
We would like to thank you for the financial support of our 8th NBIA Family Conference in Germany.
European Commission
The project work of Hoffnungsbaum e.V. within the framework of TIRCON (Work Area 7: Dissemination) funded by the European Commission (FP7/2007–2013, HEALTH-F2–2011, grant agreement 277984, TIRCON)
Appeals for donations, the proceeds of which go to Hoffnungsbaum goes
Most of the time, it is dedicated NBIA parents who launch appeals for donations or even collect donations non-stop.
MDBR sets donation record and makes 2 scholarships possible
The NBIA Disorders team and NBIA families raised a record amount for BPAN research this year as part of the University of Pennsylvania's (UPenn) Million Dollar Bike Ride (MDBR). You can find more information about this charity bike race here:...
Cycling for BPAN research - Million Dollar Bike Ride 2023
This year, the Million Dollar Bike Ride (MDBR) at the University of Pennsylvania in Philadelphia is once again raising funds for research into rare diseases. The 10th edition of the charity bike race will take place on June 10, 2023....
Fundraising campaign by the Mühlacker Lions Club for Hoffnungsbaum e.V.
Mühlacker, December 2022: As part of a club evening organized by the Mühlacker Lions Club, board member Hoffnungsbaum e.V. Board member Tiemo Durm had the opportunity to give a presentation about the club and its aims and background. The contents were well received by the Lions Club...
Mulled wine stand for the benefit of Hoffnungsbaum and Team Bananenflanke
The Sandbox Friends, Melanie Schratzenstaller, Michael Bogner, Stephan Thalhammer, Stefan Huber, Ramona Klement and Lisa Kaltenecker, from Eberspoint (south of Landshut) organized a mulled wine stand again on the first weekend of December after a break of two years...
Cycling for BPAN - Million Dollar Bike Ride 2022 a complete success again!
Video: NBIA DA It worked again - in 2022, the Million Dollar Bike Ride (MDBR, https://www.milliondollarbikeride.org/) of the University of Pennsylvania in Philadelphia was able to far exceed the US$ 20,000 mark: Almost US$ 39,000 was raised...
German-British family takes up the fight with BPAN
Kelly Sayers and Oliver Feiler are parents of two children: Max (8 years) and Emily (5 years). The family lives near London, England. 1 ½ years ago, they received the devastating news that Emily had BPAN. BPAN...
Million Dollar Bike Ride with the support of Hoffnungsbaum Successful again
Also this year, the charity bike race of the University of Pennsylvania in Philadelphia in the USA, the Million Dollar Bike Ride 2021, was held virtually. It is used to collect donations for research into rare diseases, which this year will be funded by 52...
Cycling for Laurin as part of the Million Dollar Bike Ride
As part of the Million Dollar Bike Ride (MDBR), we started a fundraiser in our backyard for BPAN. Friends, relatives and acquaintances were invited to come by by bike and bring a donation. In return, there was fresh...
Cycling for BPAN – Million Dollar Bike Ride 2021
It's that time of year again: The Million Dollar Bike Ride (MDBR) of the University of Pennsylvania in Philadelphia will take place for the 8th time until June 12, 2021. Due to the pandemic, this charity bike race will again take place not only in the USA, but virtually all over the...
PKAN family launches fundraising campaign - Newspapers report
Shortly after their 11-year-old daughter Vivienne was diagnosed with PKAN last year, the Helmold family set out to collect donations for the PKAN Fund at Hoffnungsbaum for research into one of the most common forms of NBIA, because nothing...