Funding

Here you can see the sources from which the financing of our association is composed. The two most important pillars are the GKV-Gemeinschaftsförderung and donations. In addition, we receive membership fees and project-related funding.

Donations for research funding since 2014

We use 100% of donations for Research funding. Thanks to the great commitment of individual NBIA families (see also Fundraising), our donations have risen sharply in recent years, which is significant in view of the increasing number of NBIA variants is also urgently needed. The donations are usually earmarked for the targeted promotion of research into an NBIA variant.

  • 2022: €25,011
  • 2021: €42,681
  • 2020: €74,391
  • 2019: 150.899 €
  • 2018: €30,099
  • 2017: 12.715 €
  • 2016: 11.233 €
  • 2015: 6.545 €
  • 2014: 6.635 €

We would like to take this opportunity to thank all donors and the fundraising NBIA families!

GKV-Gemeinschaftsförderung for costs of the association's work since 2015

The basis for the financing of our self-help organization is the lump-sum grants from the members of the "GKV-Gemeinschaftsförderung Self-help at the federal level". With these annual grants, we cover a large part of the costs for our daily association work, which would otherwise not be possible. In recent years, Hoffnungsbaum e.V. the following sums:

  • 2022: €18,000
  • 2021: 16.000 €
  • 2020: 16.000 €
  • 2019: 15.000 €
  • 2018: 13.000 €
  • 2017: 12.000 €
  • 2016: 11.000 €
  • 2015: 8.000 €

We would like to take this opportunity to thank the members of the "GKV-Gemeinschaftsförderung Self-help at the federal level":

Further Funding

These organizations supported our association's work with grants – lump sum or project-related.

DAK Health

We would like to thank you for your support of the strategy meetings of the Hoffnungsbaum-Board.

Technician Health Insurance

We would like to thank you for the financial support of our 8th NBIA Family Conference in Germany.

Kindness for Kids

We would like to thank you for the financial support of our 8th NBIA Family Conference in Germany.

European Commission

The project work of Hoffnungsbaum e.V. within the framework of TIRCON (Work Area 7: Dissemination) funded by the European Commission (FP7/2007–2013, HEALTH-F2–2011, grant agreement 277984, TIRCON)

Appeals for donations, the proceeds of which go to Hoffnungsbaum goes

Most of the time, it is dedicated NBIA parents who launch appeals for donations or even collect donations non-stop.

Cycling for BPAN – Million Dollar Bike Ride 2021

Cycling for BPAN – Million Dollar Bike Ride 2021

It's that time of year again: The Million Dollar Bike Ride (MDBR) of the University of Pennsylvania in Philadelphia will take place for the 8th time until June 12, 2021. Due to the pandemic, this charity bike race will again take place not only in the USA, but virtually all over the...

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